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Hello gentlemen,
I would like to get your attention for a moment please.
I’m a French speaker, so please, excuse me if sometimes my English is not perfect at all.
Let me introduce myself and the site we are working on : I’m Carl the co-founder of Hard Flaccid Info, a non commercial website dedicated to the syndrome. The aim of this site is to collate and to send anonymous data to medical authorities all around the world. HFI is independent financially because this is the only way to be transparent.
We started the project in september 2020 and it was released in december 2020. In the meantime, I developed the site and my partner and myself built a mail list that contains one hundred eighty three professionals from all over the European countries (Physiotherapists, Urologists, Neurologists, Psychologists, a German group of scientists who work on fascia...). Since it was released 20 testimonials have been published, 6 others are in progress.
The site asks for a verified email only, it’s a spam protection and to tell you if your testimonial is accepted or rejected. No name, no username, no city is asked, we ask for your country and age only (statistics). The project is not about “Who’s cured”, it’s about data only. Howether, if you are cured, you’re welcome to talk about it in the “Therapies survey”. The more data you give, the better it is. The story is very important to explain the context, we think that HF starts weeks or even months before the symptoms occur. HF seems to be more a process than an injury. All the exams come back clear for the vast majority of us. Obitoo described HF years ago in his ebook. Why are some testimonials rejected ? It’s because some do it quick and dirty. They do a 2 line generic masturbation/jelq story and fill the surveys with many “no”, “I don’t know”, “I don’t remember”, “Who knows…”. Sorry but, this kind of contribution goes kindly in the garbage and you get kindly notified. To do a good testimonial it takes between fifteen minutes to thirty minutes depending on the length of your story and the amount of data you can provide. It may sound cold and squared but it has a purpose.
The aim of this project is :
1 to build an independant database on hard flaccid following the same procedure and filling the same surveys (story, medical history, symptoms, psychological effect, drugs, therapies feedback). So providing data on HF only. Even if HF is a sub CPPS condition because both look close to each other, we think that HF needs to be recognized as a syndrome. CPPS and HF are not identical twins. Many men with CPPS don’t have HF and many with HF don’t share the same tension patterns as those with CPPS. Most CPPS guys have never heard of HF.
2 to proactively contact as many as possible different kinds of pros all around the world. Once fifty cases are published, we are going to start here in Europe and release these hundred seventy three emails left in the stack (183 - 10). Ten have been sent to see how many would follow us or give feedback : Results are four professionals, two urologists, one physiotherapist, one generalist.
3 to Make HF better known all around the world, cause the reality is that many don’t even know this syndrome. Consulting a urologist is good to rule out well known pathologies but when it comes to HF, it’s still a total waste of time and money cause as you all know HF is not a urological problem. But knowing that this syndrom does exist and that it is not a new phenomenon would help to get better support from pros. As there is no alternative term in other languages except for the term Koro who looks close to HF, the site is going to be translated in French, Italian, Spanish, German, Dutch and if it’s possible in Japanese.
Who am I ?
I got HF in 1999 at 19 years old [pain & stiffness, no ED and I never did jelq]. I got it after a massive nervous breakdown that lasted 9 months when my penis skin color changed. I was convinced that it was a shame skin disease and I went out of the track mentally wise, then HF started, that’s why I’m convinced that HF is not directly related to PE exercises, PE is just a trigger. It took me 8 years to catch the term “hard flaccid” on PE forums in 2007. Tbh, I’ve learned English by reading on HF. I got a hundred times better along the way by doing TP, meditated my life away, stretches, fitness for years and finally, I did seventeen months straight of DCT.
My symptoms were : numbness, stiffness, burning sensation, tingling, coldness, pain after an orgasm, tip redness. Standard Legs workouts and stretches mostly fixed HF years ago, but the burning sensation was killing me, so when an Algerian guy contacted me in 2018 for his HF, I decided to help both of us and to join DCT in hope to end the pain.
Today I am 80 to 90 percent out of the pain, HF occurs once in a while if I cross the red line nervously wise, so I refuse the term “cured” and will never use that marketing word, remission is a better term imo. Tbh, to keep my gains, I have to stick with a routine three to four times a week otherwise soon or later (in a matter of weeks), symptoms come back. I’m not an isolated case at all, no matter if you have had it five, ten, or twenty years.
This instability pushed me to create that site cause I want this “no medical support to end”. The equation HF = tension seems to be incomplete. The nervous system, spine and brain are physical too and these parts are the remote control for muscle tone, contraction and motion. Physical compensations are also dictated by them. The nervous system always targets the strongest muscles to do a move. Fascia, muscles, postures, compensations are imo a part of that equation. I don't like the word psychological, because today it is known that everything is physical, an emotion is physical, the mind is physical, so the head is a body part as a shoulder is. When you feel ashamed, you get red in the face no matter what the social context is. Dopamin in the brain control motivation, muscle tone and many others body functions, you can read about Parkinson's disease.
Sticking with a general routine is very difficult for many ppl and by getting a bigger picture of this syndrome, it could help to know exactly what we are dealing with to optimize the routine, or knowing if the nervous system is at the root cause of these tensions. But to figure it out, ppl with the right skills are required. Many ppl have severe imbalance, scoliosis, sciatica, flat feet, pelvic tilt, but don’t have CPPS/HF. When ppl get older, most won’t get CPPS nor HF even if their fascia is glued and thick. Most of the time, it happens when young, between fifteen and thirty five years old.
Most ppl have a bad diet on a daily basis too and don’t develop this syndrome otherwise we would not be here to talk about that homeless unwanted sub CPPS thing that we call HF. As you know it already, It’s not even an official sub CPPS syndrom,but a generic web term that almost nobody cares about except for a few UK therapists. The vast majority of pros and ppl don’t know it and there is no similar “term” to describe it in other languages.
Urology Uk news even said in 2018 that “HF this new phenomenon”, I got it in 99 and have consulted more than 20 pros all these years. Needless to say that my blood boiled in my veins when I read it.
Do you want to help ? We are in 2021, we have the internet fiber, maybe it is time to make the first step and not wait for someone, somewhere, somehow to start thinking about us and while following our routines to get better, getting in the future a real medical support, knowledge and going forward, life is short. Let’s make the first move gentlemen and send them data in their mailbox.
It’s up to you.
url : https://hardflaccidinfo.org/
Thank you for reading me
Kind regards
Carl.
I would like to get your attention for a moment please.
I’m a French speaker, so please, excuse me if sometimes my English is not perfect at all.
Let me introduce myself and the site we are working on : I’m Carl the co-founder of Hard Flaccid Info, a non commercial website dedicated to the syndrome. The aim of this site is to collate and to send anonymous data to medical authorities all around the world. HFI is independent financially because this is the only way to be transparent.
We started the project in september 2020 and it was released in december 2020. In the meantime, I developed the site and my partner and myself built a mail list that contains one hundred eighty three professionals from all over the European countries (Physiotherapists, Urologists, Neurologists, Psychologists, a German group of scientists who work on fascia...). Since it was released 20 testimonials have been published, 6 others are in progress.
The site asks for a verified email only, it’s a spam protection and to tell you if your testimonial is accepted or rejected. No name, no username, no city is asked, we ask for your country and age only (statistics). The project is not about “Who’s cured”, it’s about data only. Howether, if you are cured, you’re welcome to talk about it in the “Therapies survey”. The more data you give, the better it is. The story is very important to explain the context, we think that HF starts weeks or even months before the symptoms occur. HF seems to be more a process than an injury. All the exams come back clear for the vast majority of us. Obitoo described HF years ago in his ebook. Why are some testimonials rejected ? It’s because some do it quick and dirty. They do a 2 line generic masturbation/jelq story and fill the surveys with many “no”, “I don’t know”, “I don’t remember”, “Who knows…”. Sorry but, this kind of contribution goes kindly in the garbage and you get kindly notified. To do a good testimonial it takes between fifteen minutes to thirty minutes depending on the length of your story and the amount of data you can provide. It may sound cold and squared but it has a purpose.
The aim of this project is :
1 to build an independant database on hard flaccid following the same procedure and filling the same surveys (story, medical history, symptoms, psychological effect, drugs, therapies feedback). So providing data on HF only. Even if HF is a sub CPPS condition because both look close to each other, we think that HF needs to be recognized as a syndrome. CPPS and HF are not identical twins. Many men with CPPS don’t have HF and many with HF don’t share the same tension patterns as those with CPPS. Most CPPS guys have never heard of HF.
2 to proactively contact as many as possible different kinds of pros all around the world. Once fifty cases are published, we are going to start here in Europe and release these hundred seventy three emails left in the stack (183 - 10). Ten have been sent to see how many would follow us or give feedback : Results are four professionals, two urologists, one physiotherapist, one generalist.
3 to Make HF better known all around the world, cause the reality is that many don’t even know this syndrome. Consulting a urologist is good to rule out well known pathologies but when it comes to HF, it’s still a total waste of time and money cause as you all know HF is not a urological problem. But knowing that this syndrom does exist and that it is not a new phenomenon would help to get better support from pros. As there is no alternative term in other languages except for the term Koro who looks close to HF, the site is going to be translated in French, Italian, Spanish, German, Dutch and if it’s possible in Japanese.
Who am I ?
I got HF in 1999 at 19 years old [pain & stiffness, no ED and I never did jelq]. I got it after a massive nervous breakdown that lasted 9 months when my penis skin color changed. I was convinced that it was a shame skin disease and I went out of the track mentally wise, then HF started, that’s why I’m convinced that HF is not directly related to PE exercises, PE is just a trigger. It took me 8 years to catch the term “hard flaccid” on PE forums in 2007. Tbh, I’ve learned English by reading on HF. I got a hundred times better along the way by doing TP, meditated my life away, stretches, fitness for years and finally, I did seventeen months straight of DCT.
My symptoms were : numbness, stiffness, burning sensation, tingling, coldness, pain after an orgasm, tip redness. Standard Legs workouts and stretches mostly fixed HF years ago, but the burning sensation was killing me, so when an Algerian guy contacted me in 2018 for his HF, I decided to help both of us and to join DCT in hope to end the pain.
Today I am 80 to 90 percent out of the pain, HF occurs once in a while if I cross the red line nervously wise, so I refuse the term “cured” and will never use that marketing word, remission is a better term imo. Tbh, to keep my gains, I have to stick with a routine three to four times a week otherwise soon or later (in a matter of weeks), symptoms come back. I’m not an isolated case at all, no matter if you have had it five, ten, or twenty years.
This instability pushed me to create that site cause I want this “no medical support to end”. The equation HF = tension seems to be incomplete. The nervous system, spine and brain are physical too and these parts are the remote control for muscle tone, contraction and motion. Physical compensations are also dictated by them. The nervous system always targets the strongest muscles to do a move. Fascia, muscles, postures, compensations are imo a part of that equation. I don't like the word psychological, because today it is known that everything is physical, an emotion is physical, the mind is physical, so the head is a body part as a shoulder is. When you feel ashamed, you get red in the face no matter what the social context is. Dopamin in the brain control motivation, muscle tone and many others body functions, you can read about Parkinson's disease.
Sticking with a general routine is very difficult for many ppl and by getting a bigger picture of this syndrome, it could help to know exactly what we are dealing with to optimize the routine, or knowing if the nervous system is at the root cause of these tensions. But to figure it out, ppl with the right skills are required. Many ppl have severe imbalance, scoliosis, sciatica, flat feet, pelvic tilt, but don’t have CPPS/HF. When ppl get older, most won’t get CPPS nor HF even if their fascia is glued and thick. Most of the time, it happens when young, between fifteen and thirty five years old.
Most ppl have a bad diet on a daily basis too and don’t develop this syndrome otherwise we would not be here to talk about that homeless unwanted sub CPPS thing that we call HF. As you know it already, It’s not even an official sub CPPS syndrom,but a generic web term that almost nobody cares about except for a few UK therapists. The vast majority of pros and ppl don’t know it and there is no similar “term” to describe it in other languages.
Urology Uk news even said in 2018 that “HF this new phenomenon”, I got it in 99 and have consulted more than 20 pros all these years. Needless to say that my blood boiled in my veins when I read it.
Do you want to help ? We are in 2021, we have the internet fiber, maybe it is time to make the first step and not wait for someone, somewhere, somehow to start thinking about us and while following our routines to get better, getting in the future a real medical support, knowledge and going forward, life is short. Let’s make the first move gentlemen and send them data in their mailbox.
It’s up to you.
url : https://hardflaccidinfo.org/
Thank you for reading me
Kind regards
Carl.
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