Help! Longstanding erectile dysfunction and loss of feeling

[slowlygoinginsane Junior Member Find all posts View Profile Close slowlygoinginsane]

Hi, I'm 25 years old and for the last three years I haven't been able to achieve a full erection and I'm slowly losing all feelings of pleasure besides pain in my glans. Any suggestions as to what may be going on would be highly appreciated since all the doctors seem stumped. I personally think there is a problem with the blood-flow to my glans.

I'd be glad to provide any further explanation if requested.

Symptoms:
Inability to achieve a full erection. Chronic pain in Glans and around frenulum scar. Inability to feel any pleasure from penis or orgasm (can ejaculate though). Loss of feeling in bladder, difficulty knowing when I need to pee. Loss of feeling in stomach and associated loss of hunger and fullness feelings. Headaches and inability to focus. Exhaustion and requiring large amounts of sleep. Tingling hands and feet. Difficulty going to the bathroom but it feels like food just passes straight through me.

(August 2013)Three years ago I was masturbating when I suddenly heard a snap. The day after, I could not achieve a full erection. A month after I went to the doctor, who said it was psychological and it would pass.

( November 2014)After one of the happiest years in my life, despite not being able to have sex, it still had not passed.( In fact, my genitals had started hurting and feeling was slowly getting less. My glans felt abnormally colder and my glans hurt, especially centered around my frenulum scar (it tore a few years before and had to be stitched).

(December 2014 - June 2015)I went to see a urologist. He did an examination with marker fluid. Conclusion: I had a blockage getting blood to my penis. After months of vein-widening medication it still did not improve (neither did any version of Viagra). The Urologist's only other option was auto-injection to achieve an erection. I went to see another Urologist.

(August 2015 )The next urologist did an echography on my penis and found I was born with only one vein providing blood to my penis. He concluded I could never be healed. When I asked him about the pain, he said it was normal and I should just get used to it.

(September 2015 - November 2015) I contacted a third urologist who did basically every test in the book without much avail. (tried Cialis, viagra, electrical current to see if thre was feeling, bladder test, blood tests,...)

(November 2015) During a bladder examination they discovered I had no feeling in lower abdomen. This was a recent thing, it was getting harder and harder to tell when I needed to pee. I was urged to contact a neurologist.

(December 2015 - January 2016) had an MRI done of my pelvis, spine and brain. I'm perfectly healthy. Blood tests showed that I had nothing out of the ordinary besides a lower mL than normal of vitamin D. Later that month my blood got tested again showing I had drastically lower amounts of Vitamin D (3mL when you're supposed to have 30mL). I also lost feeling in my stomach, I have no idea when I need to eat, the only signal is dizziness when I haven't eaten for a long while.

Somewhere here I started getting extremely exhausted and got more and more headache spells, tingling hands and feet and discomfort in the stomach/bowels area (the only sensation I could feel there)

March 2016: Waiting for a psychiatrist appointment since they think it might be psychosomatic. I'm skeptical because it does not explain the pain and lack of erection.

[Nimble Banned Find all posts View Profile Close Nimble]

My friend our situations are so similar it is eerie. I started by losing sensation on a half of a dime sized spot on the penis shaft, which then started tingling and spread around the penis and onto other parts of my body. When it was spreading around the penis, I would get waves of this horrid sensation in the back of my neck and head and it literally felt like my brain was being damaged in some way. The libido was literally leaving my head and my emotions and ability to focus along with it.

Also, when it was first spreading I had this horrible feeling in my chest, upper back and shoulders as well, as though I was losing the feeling in my heart. For instance, when people feel emotions they feel it in their chest- that feeling was fading away along with the sensation of my penis and whatever horror was happening in my brain.

Later, I also lost feeling in my stomach almost exactly as you describe. I could eat an entire large bag of potato chips and not feel the slightest bit full, or any different than not having eaten for half a day.

I have had improvements though, but sometimes it gets re-damaged, but overall I think I can recover but it will probably take around three years, based on the pace of things so far. When I do have improvements, they start as a crawling, prickling itch on that exact spot that the loss of sensation first started, and then I'll have pulsing or digging pains on the shaft, typically accompanied by improvements on other parts of my body.

A few weeks ago, I had some strong improvements and afterwards had a deep digging pain in my chest and left shoulder and afterwards I could feel the emotion in my chest again a little bit.

It is a long, brutal and vicious struggle but I don't see how I could ever accept it, so I just have to wait and hope I continue to recover and if not pursue some type of cure, and there are some bright things on the horizon of medical research.

[Pegasus AdministratorPE Gym EditorPEGym Hero ☺ Admin of the Month Mar 2015 Find all posts View Profile Close Pegasus]

This really does seem a medical issue .

I w0uld try to get your vit D levels into normal range, low vit D can have a range of weird effects.

[ICanDoThis2 Senior Member Find all posts View Profile Close ICanDoThis2]

Wow. Thanks for sharing your story. I can relate to you a bit on losing feeling in your bladder . I lost feeling of full bladder and penis sensation besides the tip after a Jelqing and kegal injury . I still get hungry and full though . It didn't effect my appetite . I also struggle to get an errection but I can and have sex . I don't know what to say man. We're all stuck here . We're all hoping one of us finds out what's wrong / and if it's possible to cure .

[slowlygoinginsane Junior Member Find all posts View Profile Close slowlygoinginsane]

Thanks for the replies so far guys, I'm sorry to hear some of you have similar issues. I don't wish this on anyone.

My current hypothesis is that there's something wrong with my glans, not letting blood pass through to the head of the penis or not retaining it. The long-standing lack of blood caused the pain and a sort of pavlovian reaction, ensuring that arousal is linked with pain, thus reducing it and the feelings themselves.

The other issues (loss of feeling in bladder and stomach) could be psychosomatic due to stress and worry. I'm not certain though since I'm not familiar with psychosomatic symptoms at all.


Nimble: that's horrible man but I'm glad you're recovering. for me it's mainly headaches and dizzyness, it's luckily never gone to my shoulders, though I do have additional pain in my lower back. My pain seems to be mostly centered around my bowel area, whenever I try to achieve pleasure from my penis, it feels like my penis is trying to pull on something internal that's not there anymore.
Are you doing anything specific to speed up the recovery process or are you waiting it out?

Pegasus: That's what I thought too, luckily my third urologist is trying to figure out what's up for me outside his business hours. And I'm on a heavy Vitamin D diet with ampulles of Vitamin D enhancer every week, as prescribed by a doctor.

ICanDoThis2: I hope you find out what's wrong with you too, though I'm glad you can still have sex. I can still get an erection but it doesn't last and in't 'solid' enough to have sex. Sort of a 2 on the hardness scale, where 5 is rockhard and 1 is nearly soft. Excuse the imagery but it feels slightly thicker than a balloon packed with Slime

[ICanDoThis2 Senior Member Find all posts View Profile Close ICanDoThis2]

I hope you find what's wrong with you man . I'm pretty sure I damaged my nerves by stretching my penis and that kegal . My erection hardness is like a 4.5 from a 1 to a 5 and I lose my errection like in 30 seconds if I stand up without simulation .I'm honestly shocked you lost all those feelings by just masturbating . How hard were you going when this injury happened ? Since you only had 1 vain , maybe you were more easily prone to injury? Idk . We all have similar and different symtomps . I wish you luck bro . We just gotta keep hoping we'll all be fine .

[Excellator Senior Member Find all posts View Profile Close Excellator]

Try EGCG capsules with the highest quality and purity, take about atleast 4 a day. It'll cleanse alot and will keep your veins elastic, improving blood flow. It will also clear out free radicals.

You will be healed, no matter what happens, as long as you still have your body you will heal. We are humans, we adapt, we survive. And so do our bodies, our bodies can heal itself. Never give up hope brother!

[Excellator Senior Member Find all posts View Profile Close Excellator]

I hope you find what's wrong with you man . I'm pretty sure I damaged my nerves by stretching my penis and that kegal . My erection hardness is like a 4.5 from a 1 to a 5 and I lose my errection like in 30 seconds if I stand up without simulation .I'm honestly shocked you lost all those feelings by just masturbating . How hard were you going when this injury happened ? Since you only had 1 vain , maybe you were more easily prone to injury? Idk . We all have similar and different symtomps . I wish you luck bro . We just gotta keep hoping we'll all be fine .

This isn't necessarily abnormal. A generic male can't maintain an erection for that long without any form of stimulation. Just remember your penis is a delicate, fragile thing and improvements come real slow, do not make the mistake thinking your penis is a muscle. It is not. Even nerves in your penis can be healed as long as your DNA says they should be there in the first place. Have hope brother and keep seeking proper knowledge. I will do too for you.

[ICanDoThis2 Senior Member Find all posts View Profile Close ICanDoThis2]

This isn't necessarily abnormal. A generic male can't maintain an erection for that long without any form of stimulation. Just remember your penis is a delicate, fragile thing and improvements come real slow, do not make the mistake thinking your penis is a muscle. It is not. Even nerves in your penis can be healed as long as your DNA says they should be there in the first place. Have hope brother and keep seeking proper knowledge. I will do too for you.

Thanks bro, I appricate it it's going to be 6 months in 2 weeks . My life is good . I got a niceloving family , amazing gf and I can still have sex . I just sometimes wish I never Jelqed :/ but it's my fault for not reading instructions . I wasn't rough with my penis ... But I still hurt myself :/ let's all home it works out for all of us and thank you again man

[Nimble Banned Find all posts View Profile Close Nimble]

Ever since my initial injury, achieving and maintaining erections has been even more difficult in certain positions, especially standing. I could say with near certainty at this point that ejaculating or edging while kneeling significantly increases the chance of improvements. I am close to saying that drinking cayenne pepper powder increases the chances too, but am still experimenting to see if I can have somewhat consistent improvements without it.

I've had improvements in sensation where, shortly after, in my stomach, I experienced a digging, invigorating pain and what would best be described as a crunching, squeezing sensation, which resulted in regaining some hunger sensation and in getting back some of the ability to feel mild sickness or discomfort. Now I can really understand why some people draw comparisons between sex and food.

[Excellator Senior Member Find all posts View Profile Close Excellator]

Ever since my initial injury, achieving and maintaining erections has been even more difficult in certain positions, especially standing. I could say with near certainty at this point that ejaculating or edging while kneeling significantly increases the chance of improvements. I am close to saying that drinking cayenne pepper powder increases the chances too, but am still experimenting to see if I can have somewhat consistent improvements without it.

I've had improvements in sensation where, shortly after, in my stomach, I experienced a digging, invigorating pain and what would best be described as a crunching, squeezing sensation, which resulted in regaining some hunger sensation and in getting back some of the ability to feel mild sickness or discomfort. Now I can really understand why some people draw comparisons between sex and food.

Okay, you said that in november 2014 you had one of the happiest years in your life. Did you use any sort of drugs in this period, or any other period? I don't want to be judgemental, I am here to help. But drugs, illegal or legal and alike could seriously interfere with your physical health, even though people don't speak so much about this. Also in regards with your hormones and genital organs. Situations like these ask for brutal honesty regarding all drugs you have used, because there is a big chance they will lead directly or indirectly to the cause of your problems.

You also said that you got your blood tested, and that your vitamin D was low. This could be an indicator of something. I have a question though, what blood values did you exactly get checked, and did you get to see the results yourself? In some cases, as I have endured while suffering AAS-induced hypogonadism, urologists and many doctors lack the proper experience and are useless. They also tend to just pick some blood values, instead of a complete panel to get the bigger picture.

So once again, did you check everything? Kidney values, liver values, heart values, zinc, blood gas, a complete hormone panel including SBHG, free Testosterone, Testosterone, Estradiol, Estrogen, Prolactine, Cortisol FSH, LH and more. Iron, Zinc, Rheumatoid factor, T3 and T4 (thyroid hormones/cells) etc.

You will need all of them if you don't have them, and post the results here. There are private companies which take these blood tests, if your doctor refuses but you have to pay for it. If for example one of these values tells you there is something wrong with your thyroid or your kidneys (and both of these share a connection with the genitals activity) it is really easy to explain what is wrong. It is a known medical fact failure of proper operation of the thyroid results in erection problems. Also, if some of these blood values indicate something is wrong with your blood or organs, it could also explain why the damage in your penis is not healing after all that time, which normally should happen as it happens with everyone.

So get those blood results! An urologist only looks at your penis and testicles, while you have to check out the bigger picture. Don't get lead to a psychologist that easy, if you are sure there is something wrong with your body physically, you have to hold onto that and keep researching and observing and inspecting yourself. Also, doctors are just people with a degree in a broad basic field of knowledge surrounding physical health, and are not that much of experts.

You will find out what you have. Get the blood work, that will be a huge step in the right direction of finding what's wrong with you.

[Nimble Banned Find all posts View Profile Close Nimble]

Nikitis I think you got me mixed up with the OP. My situation has similarities, but also differences. In any case, thanks for your interest, but I don't want to hijack this thread. I'll just say as far as my case that every single thing that has happened has correlated perfectly with the loss of sensation or regaining of sensation of the penis, which started as a half of a dime sized spot on the shaft and turned into an absolute monstrosity.

Consider what happens in your brain when your penis sends pleasure signals up, or what happens in your heart and chest, what you feel in your hands, feet, thighs, etc., the far reaching chemical and hormonal effects of sexual arousal. Sexual pleasure is like rocket fuel for your brain. Since turning off the pleasure button, everything has basically turned off and I'm dead. I mean, physically, I'm breathing and eating and sleeping, but my soul is dead.

Thankfully I've had and am seeing improvements, which bring back little flickers of energy, but there is a long way to go. I'll just leave it there. I'm sure the OP will see that your question was intended for him and provide input.

[Excellator Senior Member Find all posts View Profile Close Excellator]

Nikitis I think you got me mixed up with the OP. My situation has similarities, but also differences. In any case, thanks for your interest, but I don't want to hijack this thread. I'll just say as far as my case that every single thing that has happened has correlated perfectly with the loss of sensation or regaining of sensation of the penis, which started as a half of a dime sized spot on the shaft and turned into an absolute monstrosity.

Consider what happens in your brain when your penis sends pleasure signals up, or what happens in your heart and chest, what you feel in your hands, feet, thighs, etc., the far reaching chemical and hormonal effects of sexual arousal. Sexual pleasure is like rocket fuel for your brain. Since turning off the pleasure button, everything has basically turned off and I'm dead. I mean, physically, I'm breathing and eating and sleeping, but my soul is dead.

Thankfully I've had and am seeing improvements, which bring back little flickers of energy, but there is a long way to go. I'll just leave it there. I'm sure the OP will see that your question was intended for him and provide input.

Indeed I have mistaken you for the OP, but still, my post can almost fully apply to you aswell. The first thing you want to do in these situations is assert your overall health through a complete blood test which includes everything, and then let someone with knowledge and experience check the results. Doctors most often don't do it like this, because it costs the government/healthcare system a lot of money per test (which is outrageous). They tend to isolate the cause and searching field under the mask of preciseness. Still I do really advice you as well to do this. Else you won't ever be able to determine anything. Your blood can tell you so much about your body and what might be wrong with it, don't underestimate that! Google for some companies/private labs who offer blood test services and seriously consider it.

Also, to give you and the OP and everyone else with these problems hope, see this case from 2013, this guy healed completely from nerve damage and numbness in his penis, you might want to check out his methods of healing. OP shouldn't forget that prior to the injury when he masturbated his penis worked FINE. And that means you can roll back the situation to there again. If he was born without ever being able to get an erection, that would be a way different story but this isn't the case. Check out this guy's story!

https://www.pegym.com/forums/penile-...give-time.html

[slowlygoinginsane Junior Member Find all posts View Profile Close slowlygoinginsane]

Hey Nikitis, thanks for trying to help first of all. I'll do my best to answer your questions

Okay, you said that in november 2014 you had one of the happiest years in your life. Did you use any sort of drugs in this period, or any other period? I don't want to be judgemental, I am here to help. But drugs, illegal or legal and alike could seriously interfere with your physical health, even though people don't speak so much about this. Also in regards with your hormones and genital organs. Situations like these ask for brutal honesty regarding all drugs you have used, because there is a big chance they will lead directly or indirectly to the cause of your problems.

I have never done drugs in my life, never had the opportunity not the desire too. If I used any drugs, it would be unbeknownst to me. Similarly, I don't drink anything with alcohol. Not because of strong convictions but because my taste buds and nose only register the alcohol and I don't like the taste. I do not smoke either, for similar reasons. Though I am a passive smoker, in that a few people around me smoke sometimes.
And I understand the need for honesty. The happiness I was referring to was finally being able to go back to University and discuss topics I'm greatly interested in, among other things.

You also said that you got your blood tested, and that your vitamin D was low. This could be an indicator of something. I have a question though, what blood values did you exactly get checked, and did you get to see the results yourself? In some cases, as I have endured while suffering AAS-induced hypogonadism, urologists and many doctors lack the proper experience and are useless. They also tend to just pick some blood values, instead of a complete panel to get the bigger picture.

So once again, did you check everything? Kidney values, liver values, heart values, zinc, blood gas, a complete hormone panel including SBHG, free Testosterone, Testosterone, Estradiol, Estrogen, Prolactine, Cortisol FSH, LH and more. Iron, Zinc, Rheumatoid factor, T3 and T4 (thyroid hormones/cells) etc.

You will need all of them if you don't have them, and post the results here. There are private companies which take these blood tests, if your doctor refuses but you have to pay for it. If for example one of these values tells you there is something wrong with your thyroid or your kidneys (and both of these share a connection with the genitals activity) it is really easy to explain what is wrong. It is a known medical fact failure of proper operation of the thyroid results in erection problems. Also, if some of these blood values indicate something is wrong with your blood or organs, it could also explain why the damage in your penis is not healing after all that time, which normally should happen as it happens with everyone.

So get those blood results! An urologist only looks at your penis and testicles, while you have to check out the bigger picture. Don't get lead to a psychologist that easy, if you are sure there is something wrong with your body physically, you have to hold onto that and keep researching and observing and inspecting yourself. Also, doctors are just people with a degree in a broad basic field of knowledge surrounding physical health, and are not that much of experts.

You will find out what you have. Get the blood work, that will be a huge step in the right direction of finding what's wrong with you.

I've had three doctors do independent blood studies (they took out about 7 vials each). I'm currently not at home, but I have the transcripts at home. They tested for a lot, including Lyme's disease, hormones and kidneys. I'll get the readings tomorrow and post them on here.

Also, to give you and the OP and everyone else with these problems hope, see this case from 2013, this guy healed completely from nerve damage and numbness in his penis, you might want to check out his methods of healing. OP shouldn't forget that prior to the injury when he masturbated his penis worked FINE. And that means you can roll back the situation to there again. If he was born without ever being able to get an erection, that would be a way different story but this isn't the case. Check out this guy's story!

https://www.pegym.com/forums/penile-...give-time.html

I'll definitely give it a read and see if it helps. Thanks, Northern Neighbor (referring to country) both for the advice, help and encouragement.

[Excellator Senior Member Find all posts View Profile Close Excellator]

Good to hear you did not use any drugs until now. This will make things a lot easier and wil mean your health is better then expected. Regarding the fact your taste buds in your tongue and nose can't (fully) register the taste of beer, this could be linked to a zinc deficiency, aswell as vitamin B6 deficiency and hypothyroidism (thyroid problems) aswell as some more illnesses and syndromes, as it is one of the known symptoms to these illnesses. (ageusia, hypogeusia)

A deficiency of zinc or vitamin b6 could be realistic, aswell as problems with the thyroid as these are fairly common among the world population, with the west being no exception. Have you seen an endocrinologist? If not, I strongly suggest this, but once you post all of your blood results you have available I willl also be able to determine quite alot aswell (doesn't take rocket science to do this as everything known medically is documented).

Also I will see if the doctors checked all values that you need to check with your symptoms, and I'm betting that they didn't. Post the results on here once you have the chance.

And no problem my friend, and southern neighbour! As long as I am able to help you