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Post Vasectomy Pain Syndrome - My Story

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  • Post Vasectomy Pain Syndrome - My Story

    Hi all. I have been frequenting this site since November 2009. The point of my post is not so much focused on PE, but rather a severe problem I've endured due to a vasectomy 2 years ago. Given the importance of sex and sexual well-being to those on this site, I want to provide this educational information and warning to you all, in hopes that it saves someone else from my fate. I apologize in advance for the length of this post.

    First, a little about me. I am now 37 years old. I've been married to my lovely wife for 11 years. We have three children, which are the joys of my life. I guess you could say I may not be the typical PE type. I've always considered myself of average size (I measured 6 3/4" BPEL and 5 3/8" EG in November 2009) and had no desire to get bigger (didn't even now it was a possibility and still wouldn't if not for my vasectomy experience). Sex has always been a happy part of our lives, but my wife is my best friend and our lives certainly do not revolve around sex alone. With this brief introduction, let me delve into my vasectomy experience.

    I had a vasectomy in April 2008, right before the birth of our third child.I was nervous about this procedure, but the pre-consult with my urologist convinced me that there was nothing to be worried about. The procedure itself ended up being more painful than what I was told to expect. I jumped when they went to cut the right vas, so they had to apply additional anesthetic before proceeding. Even afterward, I sensed a numb awareness of what was occurring on that side. Afterward, I iced all weekend and didn't seem to have any major issues with the overall recovery. Nothing hurt and everything progressed as I was told to expect.

    After 2 weeks, we attempted having sex. During the erection, I had a sharp pain like nothing I have ever felt before on the right side. It was in the 8-9 range and instantly killed my erection and I had difficulty getting it back to complete the "assignment". This was very depressing, but I wrote it off as just not healed yet. I continued to have pains during sex for the first 4-5 weeks, but they gradually disappeared. So I thought nothing more of it. Incidentally, when it came time to test the results, I still had sperm in my semen after two tests 3-4 months post vasectomy. The doctor offered to redo the procedure, which I declined given the pain from the first one.


    Everything was for the most part status quo after that time until September of 2009 (I would say now in hindsight my libido and testosterone levels were gradually dropping, but nothing that I focused on at the time). Then out of the blue, when we had sex one evening, the shooting pain on the right side was back. I noticed a large lump (a sperm granuloma) on that side. Afterward, each time we had sex, I experienced sharp pains. So much so that I avoided sex and noticed that my libido was quickly dissipating. I also started to notice congestive type pains during the day, often when sitting. These occurred mainly on the right side, but also started occurring on the left occasionally as well. The best way to explain these are to visualize a fire hose with a knot in it and the water turned on full pressure. Obviously there is a lot of pressure on the hose (or in my case the vas deferens section
    and epididymis attached to my testicles).

    Needless to say, I was a complete mess emotionally on top of the physical pains. I slipped into a severe depression, considered suicide on numerous occasions, and generally lost all will to live. I just wanted to be put out of my misery. This is when my wife and I started searching the web for post-vasectomy pain and came across a couple websites and a support group on Yahoo (http://health.groups.yahoo.com/group/VasectomyPain/?yguid=420162391). The picture became clear regarding what I was dealing with, that being nerve related damage due to the vasectomy along with textbook symptoms of congestive pain.
    I saw my original urologist, who immediately acknowledged that I was suffering from post vasectomy pain syndrome (PVPS) and admitted to seeing at least one "victim" every month suffering the same (none of this was shared during the pre-vasectomy consult, in fact they pushed the fact that this was a painless surgery that would have no side effects and would actually lead to more sex – man am I a sucker for a sales job; I’ve never experienced this degree of a sales push even in buying a car). He kept nervously darting in and out of the examination room as my wife and I peppered him with questions (it became immediately obvious that we knew more about the situation than he did and all he saw was a malpractice suit waiting to happen). He eventually examined me and stated I had two options, one to convert my vasectomy to open ended (the original procedure had used clips) or perform a reversal. He recommended the reversal (so at least he was honest and didn’t give me much of a run around, other than darting eyes and anxiety to have the meeting over with).
    At this point, I knew enough from my research to not try the open ended vasectomy. I selected a reversal from a specialist recommended from the Yahoo support group (I certainly was not about to have the original butcher…I mean urologist…perform the surgery). I had an uneventful reversal in March 2010. In the interim time period, I stumbled into this site as I was searching for possible options with heat treatment for my PVPS symptoms. Some other guys that have faced similar issues (particularly congestive in nature) have had success using hot tubs to reduce the production of sperm. While I didn't have access to a hot tub, I thought a heat lamp may work, and this site mentioned it being used as an option to heat the penis and groin area as part of the PE workout. So I started doing this in the mornings, and since I was sitting there doing nothing, I decided I would read up on PE and decided to give it a try. It became something I actually enjoyed and I worked out for a full three months prior to my reversal.

    The recovery to date from the reversal has been pretty much to script. After 2 weeks, we were instructed to have sex every day for the next month or more. I was very nervous about this, as I hadn’t had a non-painful sexual experience with my wife for over 6 months. But somewhat to my surprise, there was no pain at all. Over the coming months, the surgical pain subsided and I have experienced very little congestive pain. It is a little bit of a roller coaster, and I know from others’ experience my recovery can take up to 1 year, but so far, so good for the most part on the physical pain issues. If I do have any problems, now, it is related to a sort of backup pressure kind of thing in the right epi which seems to be resolved if I take a couple minutes to massage it. Obviously, it's taking some work to get things flowing again.

    Hormonal balance is another story altogether. My T-levels are that of an average 70 year old, and my libido is nonexistent. I have also suffered from mild erectile dysfunction. I am taking numerous supplements and am seeing some improvement in T-levels and emotional balance, although to date it is doing nothing to improve the libido. I’m afraid that there has been irreversible damage to my Leydig cells, testicles, and an autoimmune response (which I confirmed via tests) with sperm antibodies in my system. So this is my lot in life and something I will have to deal with the rest of my life.
    Since I'm now past the surgical pain of the reversal, I have decided to pick back up my PE workouts. I started anew a couple weeks ago. I basically follow JP's routine. As far as gains are concerned, prior to starting back up again, I was at 8 1/8" BPEL and 5 3/4" EG. So I've been quite happy with my gains and frankly they were one of the ways I've kept sane and wanted to keep going with my bad vasectomy experiences. You could say that PE has saved my life, to some extent .
    So why am I posting this? Well, I'm not telling you not to consider or have a vasectomy when the time is right in your life. And for those of you that have had one without consequence, I'm extremely happy for you and hope you never have issues (just know that medical research has found problems arising anytime from directly after vasectomy to up to 20 years afterward, so you are never completely out of the woods so to speak). What I do want to do is provide a few basic facts on PVPS so you can make an educated decision for yourself.
    While the research is limited regarding PVPS, published studies indicate an occurrence rate in the 5 - 15% range, depending on the study. Those of us with the symptoms typically guesstimate around 10%. So the majority will not experience these issues. However, if you are unfortunate to land in the 10% range, the symptoms can range from mildly annoying to life debilitating (including a couple of us who have lost their careers and are on long-term disability as they cannot function at their jobs - one I know personally has trouble bringing the groceries in and walking the dog, his situation is extremely severe). In my personal opinion, if someone had told me there was a 10% chance I would lose some or all of my sexual function and well-being, I know that I would not have gone through with the surgery (as an analogy, would you step onto a plane that had a 10% chance of crashing?). Therein lies the problem. Vasectomies are a huge money maker for the urology field, as well as seen as a major step in global population control (I don't even want to get into the manipulation used in third world countries to entice/bribe males to do this to their bodies - it's an absolute disgrace and makes me sick to my stomach). So you won't be provided this information by your doctor. And it will not be provided on the consent form you sign prior to the surgery (odd legal issue here, but if no one discloses it, they are not held accountable for malpractice as it's not considered something you would have known about if you went to another doctor, and good luck getting one urologist to take the stand against another when they all share the same malpractice insurance companies). So you need to be your own advocate and do your own homework. Also understand that while your insurance will fully pay for the vasectomy, if something goes wrong, the most likely outcome is a reversal and that will cost you $7,000 - 8,000 out of your own pocket in all likelihood (I have lost my claim battle with the insurance company, and I can even prove I was fertile all along so there is no way I did the reversal for infertility reasons). Also understand that this is not a cure all, and most of us will continue to fight varying degrees of issues throughout the rest of our lives. So this voluntary medical procedure can create complications that are not fixable (which makes it even more of a gamble in my book). At the end of the day, ask yourself how comfortable/trusting you are to mess with nature in this critical area. It seems like common sense to me now, and I thought I was a smart guy, but none of that prevented me from making the absolute worst decision in my life with a vasectomy.

    Another interesting note. Prior to having a vasectomy, everyone I spoke to that had gone through the experience said it was no big deal, no issues at all (including my dad). After hearing about my problems with PVPS, I now know a handful of guys in my own neighborhood fighting varying degrees and issues with pain. And my dad tells me he had issues his first couple years and had a follow up surgery to remove a granuloma. And one of my uncles who said it was no big deal admitted that he occasionally has pains but hadn't associated or thought they were related to the vasectomy until he heard my story. As guys, this is not something we want to openly discuss, and unfortunately most of the sufferers fight this battle alone (in fact my aunt didn't know her husband was having some issues until he mentioned it to me - he thought he was the only one and was too embarrassed to bring it up). So if you or someone you know is fighting some issues and has had a vasectomy, have them check out the Yahoo forum or do some we searches for PVPS. We are not crazy people that don't know what we are talking about, and the support group is incredibly helpful, including pointing you in the direction of medical specialists that understand and are compassionate about the issue. In particular, there is a doctor at the University of Florida who is a leading expert in robotical, specialized and focused denervation of the spermatic cord, which is the other surgical option to consider if someone has more nerve related problems with their vasectomy. Unfortunately, many of the general urologists don't know much about it and will either dismiss you as nuts ("It's all in your head") or refer you to a pain specialist and not want to see you again. But there is hope and people out there that can help. I have personally taken the calls of a couple local gentlemen who "met" me on the support group and wanted to discuss further. You will find guys that will provide you as much support as we can. Unfortunately, we do not have a larger voice or nonprofit organization speaking out for us (incidentally, there is a political activist group fighting out about female tubal ligation, which I guess has some possible issues of it's own right - and the females know how to better organize, perhaps given the breast cancer push all, I guess).

    So for the sake of providing much needed information, and knowing you all may be interested in this given your interests in PE, I am sharing a very personal, embarrassing story with you all so that hopefully your lives are not similarly affected. Take care of your bodies, and when you need (or in my case seek unneeded) medical attention, do your own homework and DO NOT simply take the doctor's word for it. They are not necessarily looking after your best interests. I hope to never make this mistake again with my future medical needs.
    Regards,

    Jason

  • #2
    Wow Jason. Thank you for sharing that with the forum here. I'm at the age where a lot of my buddies are finishing their families and are considering a vasectomy. This could petentially have them reconsider. Thanks again and I'm glad PE helped you out in coping with everything.
    To me, there is no shame in PE. It's no different than when guys first began to lift weights/bodybuild and it was a fringe thing. Now it's mainstream.

    Comment


    • #3
      as a 32 year old with three children and a wife that has issues with birth control, a vasectomy has been a topic in my life a lot recently. i for one have always been of the mindset of not purposefully 'breaking' nature (although cheating it now and again is alright).

      i think that it not only slaps in the face of the gift you've been given but also insults those not so gifted in life.

      even if an outlier incident this post is reason enough not to ever pursue the issue. thank you sir.
      Starting 2/25/10:
      BPEL: 5.5"
      EG Base: 5.75"
      EG Shaft: 5.25"
      EG Glans: 5"

      Current 5/25/10:
      BPEL: 6.25"
      EG Base: 6.125"
      EG Shaft: 5.5"
      EG Glans: 5.25"

      Goal: 8x6

      Comment


      • #4
        I've had a vasectomy now for over 4 years, and have had zero problems. I have several friends too that have had it done, and all have had no problems. I would have it done again in a heartbeat, no questions.

        I'm sure with any medical procedure there are risks but I personally would encourage anyone thinking of getting it done to do your research and if its for you, go for it. The most common thing I hear from men is there sex life is improved, because the worry of unwanted pregnancy is gone, and most say they wish they had it done sooner.

        Comment


        • #5
          Voorhees, if my story prevents even one other person from experiencing what I've experienced (or worse, I am always reminded of that when hearing about others problems with their vasectomies), than posting this was more than worth it. We are certainly an outlier minority and most people have indicated that they have not had any issues. We do have a theory amongst the PVPS group that others may also experience more rapid decreases in testosterone and libido and either don't realize it and don't link it to the vasectomy or chalk it up to getting older (and how would you prove that the natural reduction that occurs as we age has accelerated due to vasectomy). If a tree falls in a forest, but no one was there, did it really make a sound???

          There have been research studies done on animals (none done on humans that I'm aware of) that show a direct, causal link between vasectomy and lowered T-levels and testicular atrophy (one of our group's sufferers is a doctor and also has seen the atrophy and testicular change documented in analyzing cadavers, but no one has tried to see what further issues this may or may not have caused in those peoples' lives, just that it occurs). In addition, it is documented that roughly 75% of those vasectomized (and this research was done on humans, I believe) have created an autoimmune disorder in their body, as the sperm gradually leaks (or in some cases the vas/epi bursts) and your body will sense the sperm as a foreign object and will create anti-sperm antibodies. This is similar to other autoimmune disorders (such as multiple sclerosis) and the urology community will admit to this (if they are honest with you) but claim that there are no bad side effects to creating this disorder, and again this has never been researched on humans. They have shown links to this autoimmune disorder causing increased cancer risks and other diseases in animals such as dogs, but again, no one is going to take the initiative to do the research in humans (as they don't really want to have that answer in my opinion).

          The good news is that a doctor at the Univ of Florida is very seriously trying to find determinant factors as to why some men have issues and others don't. If he can figure that out, then perhaps at some point they could do a screen on the front end and let those know that have the biggest risk of difficulties from the procedure in advance. That would be a great win-win for everyone and I hope he is successful in that endeavor.

          Burt, I certainly appreciate and respect your response. And you are correct in that the vast majority will have no apparent negative symptoms. And the doctors do promote increased sex, at least mine did. That has not been my experience, but they do state that. And I hope you and your friends never experience any negative side effects, just as I wish none of this on my own family members either. The odds are in your favor. For those of you that are considering the surgery, I just ask you to do some homework first (unlike what I did) so you at least know what you are getting yourself into.

          Regards.

          Comment


          • #6
            My experience was that long term I am glad i did it, the wife and I don't need to worry about contraception any longer. I tell her though I wouldn't do it again. I wasn't well informed and had a lot of pain for about 3-4 weeks. The more I researched my pain the more freaked out I got. Luckily I was fine after about 6 weeks. It really is a roll of the dice but will typically roll in your favor. Hopefully with stem cell technology advancing those with damaged nerves and such can be repaired. It would be the ultimate nightmare.
            starting stats: 6.5-6.6 BPEL 5.5.-5.6 EG
            March: 7.2 BPEL x 6.0 EG
            March: BPFL 7.7
            Goal: 8.0 NBPEL x 6.2 EG

            Comment


            • #7
              Giveitago,

              I'm glad to hear your pains went away. I have a very good friend that after hearing my saga informed me that his lasted for the first 3 months and then disappeared and has not returned, thank goodness. What makes PVPS so hard is that the symptoms can be different and to varying degrees of pain in each person, and the onset and how they play out also change. Some of the guys have pains for basically one week or so a month on average, and just live with it knowing that is the deal. It's very unique to the individual. The typical rule of thumb for anyone that has a vasectomy is if you experience any pains in the beginning, consult your doctor, take some antibiotics or anti-inflammatories and give it a good 3-4 months. If the pains are still occurring after that time period, we consider it chronic and at that point I highly suggest you seek a reversal or denervation of the spermatic cord (if doing the denervation, DO NOT go to just any doctor that performs the service, there is only one person in the entire country that does this in the best, least invasive, and highest success rate way - I can provide specific contact information if anyone needs it).

              We as a group find that the sooner you have the reversal, the less permanent damage you will experience ongoing the rest of your life. I wish I would have had my own within the first year, as I probably wouldn't be fighting the low T-levels and lack of libido at this time. For this particular chronic pain issue, waiting (which a lot of urologists will tell you to do) is not statistically the right answer.

              Regards.

              Comment

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