I have found that 99.9% dmso is good for relieving this problem to a slightly above slight extent :P. This is an extremely strong inflammatory and causes collagen to soften. I notice more stretchiness in my dick. i got it to the point, a few times, in which, I would have been able to pe, getting good stretches and good low level erection jelqs. Im going to continue with this regimen. I apply it at leasttttttt 3 times a day. Im going to start shooting for six. Im also looking into pelvic floor therapy and also am waiting on my bathmate to come to see if overtime it will help loosen things up. Also looking into the trigger point therapy as well. And also soon may look into alpha blockers as I DO believe it MAY be a prostate prblem that while isnt the cause, makes it muchhhh worse, because around bedtime, i feel a terrrrrrrrrible tightness near my anus, as if is trying to psh out or something and it is so damn uncomfortable
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I think I might have some information that might possibly be beneficial. I've had the full blown hard flaccid condition for about 8 months now. Smaller,thinner, cold, feeling of steel rid in the shaft, etc. Without getting into all that, I've been to roughly 6 or 7 urologists and specialists and have been diagnosed by 2 separate specialists with high flow priapism. Wasn't really buying at first but as I just posted in another thread, there is no denying some of the facts.
So far I've had a Doppler ultrasound that failed to show anything, but in the coming month I'm scheduled for an MRI and an X-ray/contrast test to try and show if there is a vein somewhere that's causing the unregulated blood flow. If anyone is interested in my full story I've posted everything on this thread:
https://www.pegym.com/forums/penile-...oblems-13.html
Everyone is guessing at this point, so the fact that I actually found some urologists who recognize and acknowledge an actual problem and are currently researching it as we speak has to be a good thing. Like I said, I gave a full explanation on that other thread and don't want to try to fit it all in one post here, but I'd urge all of you to check it out at least. Thanks for reading.
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Very interesting indeed. So, assuming this is a priapism; aren't we all in serious danger of fibrosis and tissue death then? I'm surprised they didn't want to operate on it immediately for you. What gives with that?Originally posted by KeepingFaith View PostI think I might have some information that might possibly be beneficial. I've had the full blown hard flaccid condition for about 8 months now. Smaller,thinner, cold, feeling of steel rid in the shaft, etc. Without getting into all that, I've been to roughly 6 or 7 urologists and specialists and have been diagnosed by 2 separate specialists with high flow priapism. Wasn't really buying at first but as I just posted in another thread, there is no denying some of the facts.
So far I've had a Doppler ultrasound that failed to show anything, but in the coming month I'm scheduled for an MRI and an X-ray/contrast test to try and show if there is a vein somewhere that's causing the unregulated blood flow. If anyone is interested in my full story I've posted everything on this thread:
https://www.pegym.com/forums/penile-...oblems-13.html
Everyone is guessing at this point, so the fact that I actually found some urologists who recognize and acknowledge an actual problem and are currently researching it as we speak has to be a good thing. Like I said, I gave a full explanation on that other thread and don't want to try to fit it all in one post here, but I'd urge all of you to check it out at least. Thanks for reading.
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yea heat helps. no its not in our heads. you are just one of the very lucky ones who does not have it to a severe extent...
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Has anyone else noticed loss of size as well? I can definitely tell Ive lost some girth and length and the head definitely seems smaller when erect. I really hope the longer this goes on doesnt mean that fibrosis/tissue damage will continue to occur. I feel like I am going absolutely insane with all this stuff.
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Originally posted by john1960 View PostHas anyone else noticed loss of size as well? I can definitely tell Ive lost some girth and length and the head definitely seems smaller when erect. I really hope the longer this goes on doesnt mean that fibrosis/tissue damage will continue to occur. I feel like I am going absolutely insane with all this stuff.
ive noticed the loss of size as well and the smaller head however, at least it is not a significant loss in size. like .25-.3 in length and like 1/8 in girth. Secondly, I have had this for years, and a bit over a month ago, I got the fullest erection I had gottent in years. Ths tells me we still have the same amount of tissue there, it just is not getting expanded due to inadequate flow, and vasoconstriction of the vessels. You may want to get to pumping. Long term pumping will allow you to get your lost size back
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Earlier tonight I woke up from a very restful and relaxing nap and got up with a nice erection and when it died down I was looking at my completely NORMAL penis! Hadn't seen it in a week now. My brain was clearer than it's been since this happened. I walked around, made some food, hung out with my wife for a bit. Then, I went into the bedroom to weigh myself because I've been paranoid about losing weight because I'm afraid this is hypogonadism because I took saw palmetto for two weeks. I also wanted to look at it in the mirror. The MOMENT I started doing all that it hardened up and I got an adrenaline rush that hasn't gone away all night, and it's been hard all night. This is adrenaline. People who do hardcore weightlifting, skydiving, anything that gets the adrenaline going - get a hard tiny penis for a little while. Adrenaline blocks the emptying mechanisms in your penis. That's a scientific fact. It's built that way so your dick doesn't get bitten off when fighting a saber tooth tiger. Nowadays it usually it goes away for most people. For us, it gets worse. Here's an hypothesis less scary than hypogonadism...
When we ejaculate we release adrenaline. If we ejaculate a lot, we release a lot of adrenaline. Adrenaline can get "stuck" in your system for a whole day. A simple cup of coffee can make it get stuck for as long as a week. But I don't think over masturbation can be blamed for everyone's case of getting that initial first adrenaline overload, because some people have this as an injury from stretching their penis out. There's not any adrenaline being released with that. But it could be that in both cases, nerve damage has been done. I think that's a given. When the body senses one of its limbs is essentially not working, it freaks out. It Panics. It created more adrenaline > More shrinkage > More inflammation > More nerve disruption > More Panic > More adrenaline > and so on. We are stuck in an adrenaline loop. And every time your body bursts adrenaline it leaches more Magnesium, and the next time you get an adrenaline spike you have even less Magnesium and the spike lasts longer and does more damage. Another loop. So far, I've only heard of three people being truly cured of this.
- One said he used Magnesium
- One took low dose SSRI (prescription psychiatric anxiety/stress medications) and was cured in 3 days
- One said he spent a very long time getting his hormones and brain chemicals aligned and was then cured
What do all three of those scenarios have in common? Lowering adrenaline and stress hormones, and thus, inflammation etc.
If you were mentally healthy when this happened, and don't have an adrenal system that is out of whack, I think chances are that a combination of not touching it and being stress-free will actually make this go away pretty easily. Personally, I'll probably still be freaking out until I get all of my test results back next week. But I'm doing my best not to. I'm taking Chelated Magnesium and vitamin C and just waiting. I know what this has done to me mentally and emotionally in only one week, I can't imagine how it would be for months or years. Perhaps a lot of the adrenal fatigue and hormone problems people have developed are due to being stuck in this adrenaline stress loop. And they are just spinning their wheels and making things worse.
Do whatever you can to get out of the stress loop. If you need to go get tests to ease your mind then go get them. If you've fried yourself beyond self repair then maybe see a psychiatrist and get some meds for anxiety. Or take magnesium, or do whatever will help keep your adrenaline level in check. If this happened to your big toe it would have been healed in a week. It's really hard not to obsess over this. It's a struggle. But I believe that it simply will not heal under mental stress, and definitely not under physical abuse.
Abstaining is not enough if you are also worrying about it.
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Hi guys,
This is my first post on PEgym. I have never done any PE exercises, but just like many of you, I have managed to develop the Hard Flaccid condition. This all happened after a masturbation session where my erection literally died mid-masturbation. Then 5 minutes later, what do you know... Hard Flaccid. I joined this thread just to hopefully be able to help out with any insight I might be able to possibly bring to the table. I realize that we need to stick together in this, because it seems that urologists and the general medical community has very little idea about what this is or how to cure it. I cant imagine something such as this is incurable. There just seems to be the lack of knowledge out there on anything to do with it.
My main concern is not even the shrunken Hard Flaccid, but erections.
How many of you can achieve normal erections with this condition?
This worries me because right now I have a very loving girlfriend, and so far I have not even tried to get an erection with her in fear of injuring something more. I never really got spontaneous erections before this injury, so I cant really tell if this is directly affecting my erections. It seems I get generally decent morning wood, but erections very rarely can be attained with no physical stimuli.
So my question to you guys is, are you guys still able to have a normal sex life with a woman? I know personally, I can live with a shrunken hard flaccid dick, I cant live with not being able to satisfy a woman.
Thanks guys, and hopefully I can contribute positively to your search of a cure for this condition.
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Hey HFproblem. I got it from plain old masturbation too, sucks. Thanks for sharing your story.
I have spent all day conducting some experiments on myself and I've drawn some conclusions. I've had this for 8 days now and it's already taken me to mental places I never imagined I would go. I will get this solved, and I will do it quickly. I am building up a group of top rate physicians in NYC who are willing to help. I've got a neurologist and a urologist who I think are willing to help.
Here's what I've been able to figure out today...
- This condition is an injury, plain and simple. The mental states, depression, etc that come with it are a result of having it - and not part of the physiology of it. This is a muscle, tissue or vascular injury, with definite secondary nerve complications. Now that I see this, my head is clear. I am not depressed or anxious any more. I don't think I have hypogonadism. You don't go from normal and feeling good to clinically depressed in one day. You broke your penis, and that is probably the most traumatizing thing a guy can go through, especially when no doctor seems to understand what it is. That, and that alone, will cause major mental states.
- The reason for the eventual erection loss is the numbness/nerve damage. The penis develops an increased loss of sensation, starting at the base for most people.
- The reason for the numbness is the inflammation (hard mode). It is impinging on the dorsal nerve. When it is normal/soft I regain full control and strength of my BC muscles and all penile sensitivity, save for a bit that seems to linger at the base.
- I'm leaning toward vascular right now, because if it were tissue there would be much more frank pain. I believe an emptying vessel is compromised during squeezing or friction and this is the result. A corpus that cannot empty itself. This is a priapism, essentially. A priapism without an erection.
- Muscle is less likely because I popped a Flexiril and it made every muscle in my body go limp, even the ones in the pelvic floor that I've been clenching for years. Everything dropped, except the hard flaccid.
I recommend lying down as much as possible to keep inflammation to a minimum. Tylenol seems to help with that. Staving off the nerve damage is your only hope of saving your erection. If you can squeeze the tip of your penis and get a muscle twitch in your perineum then stuff is still working, the wires are still there. But first the swelling needs to stop, then the wires can heal over time. While lying down with a softie, do some exercises of the perineum muscles. They get weak very quickly. Keep stimulating the nerves, WITHOUT masturbation or rubbing. Squeeze the tip a bit. Splash cold water. Flex every muscle you can down there while you can, because as soon as you stand up it's lights out again. That's about all that can be done until we know what it is. If it's a tissue injury then keeping it soft and resting it lying down will expedite the recovery. If it's vascular, it could be that surgical repair would be the only fix. Now, to figure out wtf it is. Keep your chin up everyone.
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well i am working with keepingfaith. well, waiting to see what his progress holds. Anyway, whenever you start, tell those doctors you are going to be seeing that you have another oatient for business.... thats me. I want to see those same guys. Please get back to me as soon as you see this. Im sending you a pmOriginally posted by obitoo View PostHey HFproblem. I got it from plain old masturbation too, sucks. Thanks for sharing your story.
I have spent all day conducting some experiments on myself and I've drawn some conclusions. I've had this for 8 days now and it's already taken me to mental places I never imagined I would go. I will get this solved, and I will do it quickly. I am building up a group of top rate physicians in NYC who are willing to help. I've got a neurologist and a urologist who I think are willing to help.
Here's what I've been able to figure out today...
- This condition is an injury, plain and simple. The mental states, depression, etc that come with it are a result of having it - and not part of the physiology of it. This is a muscle, tissue or vascular injury, with definite secondary nerve complications. Now that I see this, my head is clear. I am not depressed or anxious any more. I don't think I have hypogonadism. You don't go from normal and feeling good to clinically depressed in one day. You broke your penis, and that is probably the most traumatizing thing a guy can go through, especially when no doctor seems to understand what it is. That, and that alone, will cause major mental states.
- The reason for the eventual erection loss is the numbness/nerve damage. The penis develops an increased loss of sensation, starting at the base for most people.
- The reason for the numbness is the inflammation (hard mode). It is impinging on the dorsal nerve. When it is normal/soft I regain full control and strength of my BC muscles and all penile sensitivity, save for a bit that seems to linger at the base.
- I'm leaning toward vascular right now, because if it were tissue there would be much more frank pain. I believe an emptying vessel is compromised during squeezing or friction and this is the result. A corpus that cannot empty itself. This is a priapism, essentially. A priapism without an erection.
- Muscle is less likely because I popped a Flexiril and it made every muscle in my body go limp, even the ones in the pelvic floor that I've been clenching for years. Everything dropped, except the hard flaccid.
I recommend lying down as much as possible to keep inflammation to a minimum. Tylenol seems to help with that. Staving off the nerve damage is your only hope of saving your erection. If you can squeeze the tip of your penis and get a muscle twitch in your perineum then stuff is still working, the wires are still there. But first the swelling needs to stop, then the wires can heal over time. While lying down with a softie, do some exercises of the perineum muscles. They get weak very quickly. Keep stimulating the nerves, WITHOUT masturbation or rubbing. Squeeze the tip a bit. Splash cold water. Flex every muscle you can down there while you can, because as soon as you stand up it's lights out again. That's about all that can be done until we know what it is. If it's a tissue injury then keeping it soft and resting it lying down will expedite the recovery. If it's vascular, it could be that surgical repair would be the only fix. Now, to figure out wtf it is. Keep your chin up everyone.
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I also find it peculiar that in one of Newbert's previous posts, he indicated that occasionally he had injuries in which his CS and head did not fill up properly. I too, for as long as I can remember have struggled with getting any blood into the penis head and CS. I vaguely remember squeezing an erection extremely hard when I was maybe 7 or 8 years old, and having the "red spots" that Newbert described when talking about jelqing over the glans. Mine never went back to normal as his did, and I have been struggling with this for as long as I can remember.
I had come to accept that that was just how it was going to be from now on, but I think that there is a major connection between whatever causes that, and the Hard Flaccid. Many people who experience the Hard Flaccid also complain that the head and CS are not becoming erect, or becoming soft. I think whatever injury I had that caused that for me, made me very easily susceptible to getting this Hard Flaccid.
As for the sex life, are the majority of people with Hard Flaccid still able to have sex? It seems as if I can get normal erections, but the penis head and CS remain soft (but this is something that has always happened), the problem is the shaft feels unbelievably hard and inflexible like a rock. I read many of Moxsum's posts, along with Newbert's, and it seems as if this is a common symptom of those who have the hard flaccid and can still achieve somewhat of an erection.
I'm sorry if this is very redundant for many of you, now that you are on page 29 of this thread. I am just struggling to wrap my head around this condition as a whole. Being only 18, it feels surreal that this is happening to me. However, I can live with this knowing that I am able to have a normal sex life, if that is the case.
Are most people who have the hard flaccid still able to have sex with their girlfriends, spouses, etc?
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yes you still can. I suggest highly that you begin pumping for the next few months consistently, and see if some of your head and CS quality gets better. I pumped for a week and it got slightly better, just enough for me to notice it. So I wonder how well it would have been in months (I stopped because I am trying to abstain for the next month or so). The longest I have ever abstained for though is a mere 14-18 days cant remember which exactly but between there)Originally posted by HFproblem View PostI also find it peculiar that in one of Newbert's previous posts, he indicated that occasionally he had injuries in which his CS and head did not fill up properly. I too, for as long as I can remember have struggled with getting any blood into the penis head and CS. I vaguely remember squeezing an erection extremely hard when I was maybe 7 or 8 years old, and having the "red spots" that Newbert described when talking about jelqing over the glans. Mine never went back to normal as his did, and I have been struggling with this for as long as I can remember.
I had come to accept that that was just how it was going to be from now on, but I think that there is a major connection between whatever causes that, and the Hard Flaccid. Many people who experience the Hard Flaccid also complain that the head and CS are not becoming erect, or becoming soft. I think whatever injury I had that caused that for me, made me very easily susceptible to getting this Hard Flaccid.
As for the sex life, are the majority of people with Hard Flaccid still able to have sex? It seems as if I can get normal erections, but the penis head and CS remain soft (but this is something that has always happened), the problem is the shaft feels unbelievably hard and inflexible like a rock. I read many of Moxsum's posts, along with Newbert's, and it seems as if this is a common symptom of those who have the hard flaccid and can still achieve somewhat of an erection.
I'm sorry if this is very redundant for many of you, now that you are on page 29 of this thread. I am just struggling to wrap my head around this condition as a whole. Being only 18, it feels surreal that this is happening to me. However, I can live with this knowing that I am able to have a normal sex life, if that is the case.
Are most people who have the hard flaccid still able to have sex with their girlfriends, spouses, etc?
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Don't beat yourself up. I don't think you did anything that made you any more succeptable than anyone else. My glans fills when I get a sexual erection, and not with sleep erections. That's normal as far as I know. I haven't attempted masturbation or sex since this happened. Once you hit 6 days of abstanence your testosterone levels begin to drop. So don't go freaking out about that if you end up getting a test. This is a physical injury. More specifically, this is a high flow priapism. At least that's the only thing that makes any kind of logical sense. Hell, maybe it's a whole new category. "Medium Flow Priapism". Don't get sucked into the whole sexual exhaustion, adrenal fatigue stuff. Yeah, if you have this for a long time and never figure out what it is, you will probably end up with all that stuff. But right now, you just have an injured dick. Hopefully we can find the right doctors to fix it. I am seeing a penile tissue and microsurgery expert, who is also passionate about erectile issues. I will make it very clear that thousands of young men are suffering from this and the impact it has on their lives. I just hope they can figure it out.Originally posted by HFproblem View PostI also find it peculiar that in one of Newbert's previous posts, he indicated that occasionally he had injuries in which his CS and head did not fill up properly. I too, for as long as I can remember have struggled with getting any blood into the penis head and CS. I vaguely remember squeezing an erection extremely hard when I was maybe 7 or 8 years old, and having the "red spots" that Newbert described when talking about jelqing over the glans. Mine never went back to normal as his did, and I have been struggling with this for as long as I can remember.
I had come to accept that that was just how it was going to be from now on, but I think that there is a major connection between whatever causes that, and the Hard Flaccid. Many people who experience the Hard Flaccid also complain that the head and CS are not becoming erect, or becoming soft. I think whatever injury I had that caused that for me, made me very easily susceptible to getting this Hard Flaccid.
As for the sex life, are the majority of people with Hard Flaccid still able to have sex? It seems as if I can get normal erections, but the penis head and CS remain soft (but this is something that has always happened), the problem is the shaft feels unbelievably hard and inflexible like a rock. I read many of Moxsum's posts, along with Newbert's, and it seems as if this is a common symptom of those who have the hard flaccid and can still achieve somewhat of an erection.
I'm sorry if this is very redundant for many of you, now that you are on page 29 of this thread. I am just struggling to wrap my head around this condition as a whole. Being only 18, it feels surreal that this is happening to me. However, I can live with this knowing that I am able to have a normal sex life, if that is the case.
Are most people who have the hard flaccid still able to have sex with their girlfriends, spouses, etc?
High Flow Priapism is a rare thing, one that most urologists never even see. Ours presents without an erection, which makes it even more strange. That is why our doctors have been left scratching their asses. I have access to some of the best hospitals and doctors in the world. I am confident one of them will be able to figure this out for all of us. High Flow Priapism is also know to spontaneously correct itself. This form doesn't seem to do that for some reason. From what I have read, the fix is typically a simple embolization procedure. No big deal. Fingers crossed.
DO NOT GET BUMMED OUT. Not yet anyway.
Just stay lying down as much as you can and keep the nerves alive. Monday morning is my Doppler and I am not leaving the room until we find the leak. I give you guys that promise!
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Obitoo, I appreciate your determination in finding out what is really going on. It is a very positive sign that you have managed to find doctors who actually recognize the fact that this is a REAL problem, and not something that is "all in our heads" as most doctors have dismissed this issue to be. Please keep us posted on your doctor's findings.
Can you still achieve normal erections with the Hard flaccid that you have?
I am wondering what makes the difference between the people with hard flaccid that seemingly can get erections with no problem, and the ones who have severe ED to go along with it.
Its very tough, with no official medical info on this topic to really know what is going on, and you obitoo seem like you are close to having a doctor figure it out for you. Best of luck to you man, I hope for everyone's sake your doctors are able to figure it out.Last edited by HFproblem; 03-19-2011, 10:18 PM.
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