The Official Hard Flaccid Recovery Thread

[obitoo Banned Find all posts View Profile Close obitoo]

Obitoo, I appreciate your determination in finding out what is really going on. It is a very positive sign that you have managed to find doctors who actually recognize the fact that this is a REAL problem, and not something that is "all in our heads" as most doctors have dismissed this issue to be. Please keep us posted on your doctor's findings.

Can you still achieve normal erections with the Hard flaccid that you have?

I am wondering what makes the difference between the people with hard flaccid that seemingly can get erections with no problem, and the ones who have severe ED to go along with it.

Its very tough, with no official medical info on this topic to really know what is going on, and you obitoo seem like you are close to having a doctor figure it out for you. Best of luck to you man, I hope for everyone's sake your doctors are able to figure it out.

So far my erections seem to be ok, but I'm doing everything I can to avoid getting them until a doctor tells me otherwise. I'd venture to guess that the folks who have more severe ED with this simply have more severe nerve damage. That's probably down to either having had it for longer and/or having spent more time in hard mode. I have done everything I can to remain lying down since this happened. When I get up to do anything I immediately lie down to relieve the pressure off the dorsal nerve. Nerves will heal, but they take a long time and require a consistently safe environment. Erections don't cause nerve pressure, it's the abnormal inflammation that does. Otherwise every man in the world would have a numb penis and ED. Keep the hard flaccid to a minimum as much as you can. Tylenol seems to help with that for some people.

And for god's sake, do not masturbate with this condition. This could potentially just heal up on its own, but I would think a 100% hands-off approach would help facilitate that.

There is official medical info on this topic, we are just looking for it in the wrong place. Just look for High Flow Priapism and you'll find plenty of info. Remember, 50% of all doctors graduated at the bottom of their class. Very few doctors think outside the box, or even consider "rare" conditions at all. Rare things do happen, that's why their called "rare" and not "non-existent". This is a high flow priapism due to trauma. Whether that trauma was stretching your dick or masturbating too much or just masturbating once, it doesn't matter. It's not caused by depression, or sexual exhaustion, or your hormones, or your pituitary gland. Having this causes all of those things, if you continue the worry and fail to get proper care. Do not fall into these traps. They are black holes that lead nowhere. Take a deep breath and see the obvious truth that you physically injured your penis, then find someone willing to help you fix it up. And don't do it again.

Do not go to your local yokel strip mall doctor or urologist with this. Find the biggest university hospital in a major city. Do not go to the emergency room. Emergency Rooms are staffed by 25 year old idiot residents. Call the urology department and ask for the chief. Tell them you have High Flow Priapism and your local doctors are too inept to help you with it and it's ruining your life and destroying your penis. It is rare so they may not believe you. Tell them you injured your penis. Tell them HOW you injured your penis. Sorry, but you might have to tell them that you do penis enlargement exercises or that you get off on having your girl kick you in the taint. Whatever it is, just tell them. Make sure they don't dismiss it because you don't have an erection. An erection is NOT a prerequisite for this. Make sure they understand that it goes away when lying down. Demonstrate this for them. It may help them figure out where the damage is. During the ultrasound, make sure they don't rule it out just because the dorsal vein isn't showing as thrombosed on the ultrasound. It may be damaged internally in the perineum or even hidden. Do not leave until they fix it for you.


Treatment of High-Flow Priapism:

Spontaneous resolution of high-flow priapism is likely (60%), ice packs may help in spontaneous thrombosis of the ruptured artery. (Glad we all followed everyone's advice of applying heat) If conservative treatment fails, selective embolization of internal pudendal artery is necessary. The last treatment option is the surgical ligation of the ruptured artery, which can be identified with intraoperative Doppler ultrasonography.

Here's a story of a successful recovery after 2 weeks of having it: http://www.rcsed.ac.uk/journal/vol43_1/4310068.htm

Here are ultrasound examples of short term and longterm high-flow priapism. Print this and bring it with you: http://radiographics.rsna.org/content/23/2/495.full

[Mr.Friend Senior MemberPE Gym Editor Find all posts View Profile Close Mr.Friend]

hey man can you throw me a pm? Its important and can even help with promoting more doctors to look for the solution to this problem

[john1960 Senior Member Find all posts View Profile Close john1960]

Im just trying to understand though, isnt a priaprism an actual erection? I didnt think what we were experiencing is an actual erection. Its just an absurd occurence of stiff penile tissue. Erect means actually raised. Please help me understand.

[obitoo Banned Find all posts View Profile Close obitoo]

Priapism simply means abnormal blood flow to OR from the penis. In our case, it is to. He'll, maybe it's both. Typically someone would get a (low flow) priapism during sexual activity, while they have a boner, and it would get locked in that state. High flow priapisms typically happen with trauma to the penis or perineum, and not necessarily during sex. This is also not as drastic. When a normal penis is flaccid, it actually doesn't keep much blood in it at all. It's pretty much just a dry sponge. When blood enters the penis it gets hard. That's an erection. That's it. There's no need for it to be pointing up in the air. In fact, it wouldn't be unless you were sexually aroused. This is a thrombosed vein. Just because it's not engorging your penis full of blood to the point of a raging hard-on in insignificant. ANY blood in the penis makes it hard. Penile tissue doesn't get stiff. Your penis is stiff because there is blood in it. That's all. It's not a ton, but it's more than zero, and that's what should be there.

The good news is that, as far as priapisms go, this is the best kind to have. There's no chance of necrosis or any of that. This isn't your penis not having any blood in it. And it's not your penis having old blood trapped in it. It's just a very steady stream of blood coming in, and the inward veins are much larger and pumping much more than the outward ones. Think it's a coincidence that the vein on top of your penis suddenly is much larger, and that the two on the bottom are now engorged more than ever? I do think everyone should be careful about injury though since we're all walking around in a rigid state. Don't want to end up with scar tissue or anything.

The only other real threat with having this is nerve damage, which is very real and very scary. I'm only a week in and I've had major muscle loss already. I've dealt with this in other parts of the body though so I am confident I can get it all back to normal once the vein is sealed up. You can try ice packs and stuff too, but I think ours might be inside the perineum or behind the base of the penis. Still worth a shot.

Everyone, STOP with the Omega-3 as well! Jesus, we're all sitting here applying heat and promoting maximum blood pumpage. Totally wrong. I'm not a doctor, but I'm also not delusional. I was doing trigger point massage on my taint and masturbating more often than normal to try and help a misdiagnosed prostatitis when this all happened. I didn't slip into a brain chemical shock from jerking off. This is a physical injury guys. Let's all get fixed up and move on.

When talking to doctors it is very important that we do not use the term "hard flaccid". Do not use the word "flaccid" at all. Tell them you have a small erection that won't go away. Use the word High Flow Priapism and tell them you injured yourself. Do not allow them to dismiss you and insist on treatment from a top surgeon at a real major university hospital. If they don't like the term High Flow Priapism or can't grasp the concept of how it goes away when lying down just call it a thrombosed vein, simple as that. They will help you. Make sure you make them very aware of the nerve damage and distress and pain it is causing you.

[obitoo Banned Find all posts View Profile Close obitoo]

I suggest everyone take a look at these cases and see if they ring any bells. I know a number of people got the left side dent and curve with this, I did as well. There is a documented case of it right here. Looks like a thrombosis of the dorsal vein with a mild tear of the interior tissue. http://www.ncbi.nlm.nih.gov/pmc/arti...00024-0042.pdf

[HFproblem Banned Find all posts View Profile Close HFproblem]

The only other real threat with having this is nerve damage, which is very real and very scary. I'm only a week in and I've had major muscle loss already. I've dealt with this in other parts of the body though so I am confident I can get it all back to normal once the vein is sealed up. You can try ice packs and stuff too, but I think ours might be inside the perineum or behind the base of the penis. Still worth a shot.

Obitoo, what do you mean by muscle loss? Has anyone else noticed such muscle loss?

I feel as if you are onto something. But what is to be said for the people who have had all of the ultrasounds and various tests done, and still have yet to find any significant abnormalities with their penis? If this were something such as a priapsim wouldn't that be apparent in tests?

Also how come many are able to have sex without making the condition any worse?

This does make sense though, as the definition of a priapism is basically what we have, in inwards flow without enough outflow. Plus the Soft Glans and CS that I and many others experience also is a symptom of a priapsim.

[HFproblem Banned Find all posts View Profile Close HFproblem]

Also, what do the people that have this condition with a girlfriend do? That is my biggest concern.

[obitoo Banned Find all posts View Profile Close obitoo]

Obitoo, what do you mean by muscle loss? Has anyone else noticed such muscle loss?

I feel as if you are onto something. But what is to be said for the people who have had all of the ultrasounds and various tests done, and still have yet to find any significant abnormalities with their penis? If this were something such as a priapsim wouldn't that be apparent in tests?

Also how come many are able to have sex without making the condition any worse?

This does make sense though, as the definition of a priapism is basically what we have, in inwards flow without enough outflow. Plus the Soft Glans and CS that I and many others experience also is a symptom of a priapsim.

Because the dorsal nerve is being constantly impinged upon, I have muscle weakness in the perineum. Same as having a pinched nerve in the spine withmuscle atrophy in te leg as a result. It's like nerve root compression. Vaginal sex is probably the safest activity one can do with their penis so I don't see why it would make it worse. Unless there is indeed a tear inside, which I'm beginning to think is the case. I just got married so this is effecting my life in a major way. I'm simply not leaving the facility until they find it. That's where I'm at, not taking no for an answer.

[Mr.Friend Senior MemberPE Gym Editor Find all posts View Profile Close Mr.Friend]

Because the dorsal nerve is being constantly impinged upon, I have muscle weakness in the perineum. Same as having a pinched nerve in the spine withmuscle atrophy in te leg as a result. It's like nerve root compression. Vaginal sex is probably the safest activity one can do with their penis so I don't see why it would make it worse. Unless there is indeed a tear inside, which I'm beginning to think is the case. I just got married so this is effecting my life in a major way. I'm simply not leaving the facility until they find it. That's where I'm at, not taking no for an answer.

youre in the facility now?

[john1960 Senior Member Find all posts View Profile Close john1960]

Hey obitoo, what about when the penis gets extremely turtled to like the size of a peanut but is still hard at the same time? Its hard for me to imagine blood going in when it is that small and turtled?

And what about the guy that cured his with magnesium and another with a small dose ssri and such? How can that be explained if it was high flow priaprism in their cases?

[HFproblem Banned Find all posts View Profile Close HFproblem]

Obitoo, what exactly are your symtoms indicating to you that you have perineum weakness? I only ask because I have noticed some weird symtoms in that area since this happened and I dismissed it as in my head.

[obitoo Banned Find all posts View Profile Close obitoo]

Hey obitoo, what about when the penis gets extremely turtled to like the size of a peanut but is still hard at the same time? Its hard for me to imagine blood going in when it is that small and turtled?

And what about the guy that cured his with magnesium and another with a small dose ssri and such? How can that be explained if it was high flow priaprism in their cases?

No idea how those guys got cured. Magnesium is used to treat thrombosis, here's one example: http://www.mgwater.com/cad.shtml and you can Google for more. Magnesium also keeps adrenaline down, which should help prevent spikes of blood rushing to the penis. SSRI's raise seratonin levels and cause impotence, both helpful for keeping the area clean for healing. The fact is that High Flow Priapism resolves on its own in 60% of cases. They had me convinced too for a minute though. If I were seeing reports of hard flaccid on depression forums, or suicide networks, or goth chatrooms, or ANYWHERE besides penis exercise forums then I'd think differently. But we don't, because this is an injury.

We can't speculate on the mental states of strangers, and whether or not we are all suffering from the same mental problems. To assume that is absurd. What IS a much safer presumption is that we all got this in a very similar manner - physical trauma to the penis. Be that hanging weights from them, or jelqing them, or just masturbating a little too aggressively. I was in a decent enough mood the day this happened, as I'm sure many of us were. To just assume that a bunch of people WHOM ALL PRACTICE PENILE ENLARGEMENT happened to come down with an identical systemic condition involving blood flow to the penis and hormonal and emotional changes and it have nothing to do with physical trauma is just ridiculous. Just step back with a clear mind and think about it for a moment. It's obvious. Now, it may not be common. Hell, it may even be something so new that it will get its own name by the time we're done. But I doubt it. I think it's a simple thrombosis of the penis with perhaps some trauma to the internal chambers. And of course, people not leaving their dicks alone long enough for it to heal might have something to do with it. Or maybe its lengthways tear so weird that even morning erections are enough to prevent it from healing. Who the hell knows. I know who will know, the doctor I am seeing. And then he'll fix it.

I'm having my MRI and ultrasound tomorrow. The ultrasound will be performed standing up to ensure these people don't miss anything. And like I said, I'm not leaving until we find it. I don't care if they have to shove a camera up my ass and out my pee hole. We will find it. Seeing as I can stop it from happening by applying pressure in my pube area above the dorsal vein, I'm guessing the vein has been stretched and the point of failure is somewhere behind the pubic bone in between the penis and the ass. Or it could be right there on the shaft. Ya know, somewhere near the giant 3 inch vein that appeared out of nowhere the day we all suddenly came down with an instant hormonal imbalance and mental disorder.

This is an injury. Stop fooling yourself of otherwise and spare your mental health.

[guitarded96 Junior Member Find all posts View Profile Close guitarded96]

I have the same condition. I can still maintain an erection for sex. albeit, its harder to get one.

But when I run or go to the gym, it seems looser. It really is sporadic. I am really confused as to what to do.

[obitoo Banned Find all posts View Profile Close obitoo]

Obitoo, what exactly are your symtoms indicating to you that you have perineum weakness? I only ask because I have noticed some weird symtoms in that area since this happened and I dismissed it as in my head.

Well, last week the muscles were very strong, and now they are very weak. I am dribbling pee into my pants on the subway. That never happened before. Just the act of flexing my BC muscles is difficult. When I lie down for a bit and take the pressure of the nerve on my penis, it gets better. I had the same problem 10 years ago in my right leg. The nerve was being compressed in my spine and all the muscles in my lower leg went limp and numb. It went on for months before I was smart enough to get it handled. I got my back fixed and did some physical therapy and it's back to 100%. I predict the same outcome for my peener.

[obitoo Banned Find all posts View Profile Close obitoo]

I have the same condition. I can still maintain an erection for sex. albeit, its harder to get one.

But when I run or go to the gym, it seems looser. It really is sporadic. I am really confused as to what to do.

Go to the doctor and tell them you have a blood flow issue from an injury which causes the blood to rush into your penis for no reason when you are standing up and its ruining your life. Tell them to find the valve that has been broken and fix it. Tell them it's called a High Flow Priapism. Tell them you know it's rare, probably as rare as trying to lengthen your penis by stretching it out on a daily basis. That will probably convince them that you are for real. If not, show them the giant vein that appeared on your dick the day it became a hardened acorn for no reason.

What were you doing the day it got hurt? Were you sitting on the toilet writing poetry? No. Were you listening to Joy Division and carving words into your wrists with a razor? Nope. Were you drafting a suicide note? No sir. Were you seething with a dangerous amount of sexual energy driven by porn and casual sex? Probably not. Nope, you were probably stretching your penis out in your bare hands in an attempt to make it longer. Or like me, just jerking off after doing pelvic muscle stretches. Or just having regular sex. You didn't go from pretty normal dude to mental patient with a flick of your wrist. It's an injury.