I need help guys (ED getting worse)

[steve123 Senior Member Find all posts View Profile Close steve123]

Sorry to hear about your struggles UKguy. I know what it's like to keep searching for answers and not getting any from doctors. I've come to realize that we, as patients, have the right to seek 1st, 2nd, 5th opinions. So if you're not happy with the care you get, keep going to see other docs man. But eventually, you yourself have to come to the realization that either you are misrepresenting your ED, or believe it or not, that the docs may be right.

It is completely possible you are misrepresenting your ED. Like if you feel you really have a problem that warrants expensive medical tests. Then why use descriptors like mild. Definitely mild ED doesn't warrant any invasive diagnostic procedures or treatments. So you just gotta do some thinking i feel. Think about what's going on in both heads and plan from there. Maybe repost your symptoms in a more objective way to us. That way you will know how to describe your symptoms better for doctors to understand you better.

Now if I was a urologist and you came into my office with symptoms you describe, to put it honestly, I would say this. You have ED that only occurs when you move out of bed. But when you stay still your tool works. Do you really want me to do invasive, costly tests for venous leak when it's unlikely you have venous leak and anyways I would never do the surgery? I would also say, I do agree we should do a NPT test because you are having symptoms. But if that's normal, I would ask you to see a psychologist who can help you more than i can.

I hope the above made sense and helps you out brother.

Steve

[Pegasus AdministratorPE Gym EditorPEGym Hero ☺ Admin of the Month Mar 2015 Find all posts View Profile Close Pegasus]

My friend had mild heart releated symptoms and the specialist told him he had a bug. He ran into a friend who told him that a mutual friend that had been told the same thing died the day before. So he went to a new doc and overstated his symptoms ,it saved his life.

[flex Senior Member Find all posts View Profile Close flex]

The OP's symptoms don't show any possible signs that there is a venous leak, which is more then likely why any good Urologist wouldn't waste money testing for such.

Deflated glans and losing an erection within seconds are in fact "possible signs" that there is a venous leak. I'm not suggesting that this is the case here, only that he get the right tests.

[palladin Member Find all posts View Profile Close palladin]

From what I understand, venous leakage is associated with a lot of organic EDs, without being the primary cause. The first thing you would check out is whether sufficient blood makes its way up the penis in the first place - i.e. do a doppler ultrasound.

If you are going to use Viagra on a daily basis, then perhaps Cialis is a better choice, as its effects are more spread out in time. I was advised to take 5mg a day. But if the aim is to get the blood flowing in that area so as to promote healing, then taking a hot bath every day would be a good first step - and a lot cheaper as well. But both are a good idea: there is a fair chance that whatever it is that ails you will only be fixed by the body's own self-healing process, so you might as well start helping it along.

Btw, never buy any drugs online!

[flex Senior Member Find all posts View Profile Close flex]

These symptoms don't necessarily mean you have a leak either. There was a thread on thunders discussing soft glans. There was one post with quotes from urologists discussing soft glans. These were doctors from the ISSM. One guy treated several patients with the condition:

I have several young patients with soft glans syndrome and vasculogenic ED secondary to traumatic cavernosal artery insufficiency (no leak) who I have performed a microarterial bypass surgery from the inferior epigastric artery to the dorsal artery with or without ligation of the dorsal vein with excellent results. Both conditions (ED and soft glans ) improved after surgery, however I don't know if the improvement of the soft glans syndrome is psychological or due to increase in inflow or decrease outflow. Base in my anecdotal experience, I think that well selected patients with a normal psycological evaluation may benefit from bypsas surgery with or without ligation of the dorsal vein.

.

Young guys. Trauma. Soft glans. Some ED. They found the right doctor and had excellent results. Maybe you have something physical going on, maybe not. But there's a good chance you can find someone to help you. Don't give up. Good luck.

[UKGuy Senior Member Find all posts View Profile Close UKGuy]

Thanks everyone for your advice there is quite a bit to discuss here so..

It is completely possible you are misrepresenting your ED. Like if you feel you really have a problem that warrants expensive medical tests. Then why use descriptors like mild. Definitely mild ED doesn't warrant any invasive diagnostic procedures or treatments. So you just gotta do some thinking i feel. Think about what's going on in both heads and plan from there. Maybe repost your symptoms in a more objective way to us. That way you will know how to describe your symptoms better for doctors to understand you better.

Well perhaps moderate is more accurate and not severe either because I can still get an erection. I will detail the issues I have again.

Erectile Dysfunction symptoms:

Lack of spontaneous erections often completely absent

Glands won't go firm and don't fully expand when aroused so I can't get fully "rock hard"

Weaker erection overall (probably due to damaged and deflated glands), erection doesn't reach full size. Lack of "throb".

Erection will start to decrease immediately (like almost the instant I get an erection) unless I keep constant physical stimulation going or I keep flexing my pc muscle in an effort to try and hold blood in my penis.

Penis in flacid state feels firmer (less elastic) it feels hard in places when soft

Morning erections are infrequent I loose my erection as soon as I get out of bed or do anything.

Ejaculation seems a bit weaker I don't shoot much like before rather it dribbles out.

If you are going to use Viagra on a daily basis, then perhaps Cialis is a better choice, as its effects are more spread out in time. I was advised to take 5mg a day. But if the aim is to get the blood flowing in that area so as to promote healing, then taking a hot bath every day would be a good first step - and a lot cheaper as well. But both are a good idea: there is a fair chance that whatever it is that ails you will only be fixed by the body's own self-healing process, so you might as well start helping it along.

I would actually try Viagra and on a regular basis even I had to rely on it for the rest of my life because I doubt I would ever get a penile implant (hopefully it won't come to that). The thing is though here in the UK anyway I can't take Viagra or any other ED pill unless my GP gives me approval to take it and of course being 26 years old most doctors say I'm way too young to use it. Still though I would try it.

OK so if it is in your head lets do something about your head.

I don't think so actually I would say I am the opposite. You see I did a lot of meditation to help with my racing thoughts and confidence issues and meditation helped me a lot in having a clearer and more calm state of mind I am almost like a Zen monk in this regard . I don't really have anxiety trying to get an erection or anything like that at all I know is I likely have a physical problem I'm sure of it. I wish it was all in my head because if it honestly was I would of tried to get laid by now even by an escort. These erection problems have no doubt held me back from losing my virginity I know it's kind of an excuse but it is a good and legitimate reason.

I am willing to pay and see a good urologist near me (preferably) in London but I doubt I'll be able to do this on my own without any help.

Cheers

[steve123 Senior Member Find all posts View Profile Close steve123]

have you tried kegeling? Just asking because it could be a weak pc muscle.

[steve123 Senior Member Find all posts View Profile Close steve123]

Kegel

Although I am not a big fan of them they work and can work very well if you are consistent with them. From my experience in the past with kegeling in just a few weeks my erection went from hard to being as stiff as a steel pipe when erect, it took longer to lose my full erection and noticed more sensitivity because it was so hard. Just touching my dick to take a leak often gave me instant wood in 3 seconds flat. Other benefits including having mind blowing orgasms and being able to shoot your cum like a pornstar. The kegel exercise is proven to work the only side effect I know of is if you do too many kegels before you're used to it your erections might be poor for a day or so but it's only temporarily.

Or there is the:

Viagra Daily Treatement

I haven't done this myself yet but judging from medical studies in recent years it looks pretty promising.

Here is a link to the study:

New Viagra Study - Health News Story - WJAC Johnstown

Basically the idea is to take Viagra regularly everynight before bed. For at least 3 months for the effects to be permanent. Studies over the years have confirmed that men with mild ED who took Viagra prior to sleep each night for 3-6 months found they were cured of ED, they no longer needed to take Viagra, the blood flow improvement was permanent and they regained spontaneous erections. Apparently Viaga also works well even for men with more servere forms of ED. I believe regularly use of Cialis can have the same results as well. I think this Viagra/Cialis routine is worth a try for sure.

Well I hope this thread is of some use and like I said if you have any other ideas I am all ears. I have had mild ED for around 4 years but my goal to get my erection quality back as best as I can naturally.

Thanks

UKguy, i found this old post of yours after posting my previous post. I think kegels could be your answer. They worked great for you in the past, and while you may not like doing them, they are your best chance of doing things naturally.

When i did them right, my experience with kegels has been really good as well. I do 10 second holds and 10 seconds break. and i try to do them for 10 minutes, 3 times a day. Since I been doing that, I have been having firmer erections. Also, my girl notices that I'm keeping erections better than I was able to. Now I have similar problems as you and thought and still think that I have venous leak. But, since kegels been working so well...maybe I needed to strengthen the pc muscle.

what does it have to do with you? Well, it worked for you in the past. Do it again, and force yourself to a kegel routine, and see if it helps. I have a sneaking suspicion that in a week, you will see improvements.

[UKGuy Senior Member Find all posts View Profile Close UKGuy]

Penile Implant

HI again guys well I have been here now for a longtime my main reason to be on here is to see If I could naturally cure my ED (of which I have had for nearly 7 years now). I don't want to keep repeating myself but 6-7 years ago I injured my penis a few times. 1st time when jelqing I think I was too erect I lost my erection and found the glands wouldn't inflate properly not as much as before. Yet I was still able to maintain a erection nornally (I think). Then I stupidly tried some stretches and again I must of stretched a bit too hard, my penis immediately shrunk up really small and felt quite hard it scared me to death but witin in a hour or so it went back to normal. Since then though I have had noticabely weaker erections, hard to maintain them and I feel it's got worse as the years has gone on. I'm at the point now where when I get an erection I will loose it instantly litterally as soon as I get any sort of erection I will loose it straight away. Spontaneous erections are quite rare but I still get them but they're very weak, If I see a woman I'm attracted to I get the rare erection but it's a very weak partial erection. Morning erections I get them still as well but again they're not that hard and I loose any sort of hardness as soon as I get out of bed or even move.

Now I have tried some things, exercise, "healthy" diet, kegels etc none of which really helped although with kegels I can get much harder erections but the head still remains so deflated (the Corpus Spongiosm doesn't hold blood well) and I still loose my erection fairly quick. It's weird but kegels seem to give me a bit of "boost" in erection quality but my erection quality by default is weak and pathetic no lasting ability at all. I can only maintain an erection with near constant hand/physcial stimulation and even then my erection isn't all that rockhard and the glands still don't inflate very well. Without physical stimulation of my penis it will start to go limp instantly. I'm not even talking a few minutes here but seconds. I don't think I have nerve damage though because I respond to physical stimulation or porn but it's just a weak reponse and erection like I said.

I have come to the conclusion that I do indeed have the dreaded "Venous Leak Syndrome" I have all the classic signs, however I haven't been diagnosed with it officially but even If I had the cures for this disorder are almost non existant.

Now as much I hate/am embarrased and ashamed about penile implants and getting one I honestly think If want to have any sort of sex life I may have to face up to reality that I may need one. I'm still yet to even have sex. Yeah I'm only 26 years old but I believe I have done irreversible damage to my penis and it has been at least 6 years now since I injured ir. I think like others who are in the same situtation also wanted to believe it would heal naturally and unforunately (at least in my case) it hasn't. I also have the "hard flacid" firm feeling penis and I'm sure it's from that day I stretched a bit too hard (I never felt any discomfort though). My worry is the firm feeling is due to internal scar tissue also my flacid penis feels less elastic and more rubber like.

What do you guys think I hate the idea of having an artificial erection for ever more not just becasue of the embarrasement of it but also because feeling lses of a man. However the more time and the years go on the more I'm convinced I need an implant to have a sucessful sex life unless I remain limp and a virgin forever but I don't think I could psycholigially cope with that. I'm trying to remain positive but I'm loosing hope and I don't think I can fool myself forever I think my dick is beyond repair.

I would like to hear from anyone else who maybe in the same situation younger guys who may of got an penile implant.

Thanks

[slaveking Member Find all posts View Profile Close slaveking]

what do u mean by ""stretched a bit too hard""?? and did u perform streching and where did u put pressure?? i am asking coz im also doing streches on my pelvic floor area so i want to make sure not to repeat what u went through...

first of all..u seem to be a virgin...this means u need to try sex to be able to judge wther u can do intercourse or not...
second..if u can get erection using stimulation..using hand..then when having sex ur stimulating naturally...ur problem can also be psychological as well..as u seem to be convinced that u cant have sex even before attempting it..im not sure if u did or not...i failed first three attempts but finally could manage to penetrate....HOW MANY UROLOGISTS DID U VISIT??WHAT DID THEY SAY ABOUT YOUR SITUATION??DID THEY SUGGESTED PENILE IMPLANT??
third, u may have a kind of penile fracture...if u have then u just need to perform a surgery...
i also think i may have penile fracture..i get erection but my penis dsnt raise that high and also i cannot maintain my erection that much without stimiulation...here what i have shared my problem in one of the threads...

"" i think i also have a penile fracture but maybe not that badlyy... i get erection fine with stimulation...without it it goes fast..nd while standing it goes faster....my penis also doesnt rais up as used to be and it is same as ur 9oclock type...i think i injured myself when i was 15..now im 29..i used to do bedfuck type masterbating..pressing the erect penis against the floor or bed or sqeezing it between legs...my orgasm is fine nd ejaculation is also good...i also have difficulty starting peeing...i have to push very hard to start peeing....sometimes when i masterbate my penis get like this if i stop masturbating in middle though it happens very rare lets say 1 out 10..have a look at the picture..and see if ur penis get like this or not..
Photo of the Month for September 2009 | Maricopa Emergency Medicine
it say penile fracture occur due to injury or trauma on (tearing the tunica albuginea.) and i searched google and the best way to find out is through MR Imaging of Acute Penile Fracture..you can read here..
Medscape: Medscape Access
MR Imaging of Acute Penile Fracture1

[darrenneedstolearn Member Find all posts View Profile Close darrenneedstolearn]

Mr ukguy, there was a dude on thunders place who had a soft head glans who got his veins striped which worked and last report i read was its been good for 4 years and counting. You have had what ever you got for 6-7 years and you have never been hospital, i dont care what you say venous leak you can not get hard without playing with it and you need to keep playing with it to keep it hard or it will die straight away. Put it this way i couldn't even get hard without touching it and when i did it was only a semi and this went on for weeks until with all the effort i put in pelvic floors and edging i got it back to normal but your case sometimes you do not even have to touch it which shows i was worse of, your talking about implants when in 6 years you have never been hospital. that is so fucking crazy. how can anyone advise you, anyway if you like to know about implants there is a site just like this but for people who have implants so you can read on how they feel ect but that's way of course, first step hospital and if anyone else reads this please advise him to go hospital

[UKGuy Senior Member Find all posts View Profile Close UKGuy]

Okay I will reply to some things said here bear with me...

what do u mean by ""stretched a bit too hard""?? and did u perform streching and where did u put pressure?? i am asking coz im also doing streches on my pelvic floor area so i want to make sure not to repeat what u went through...

first of all..u seem to be a virgin...this means u need to try sex to be able to judge wther u can do intercourse or not...
second..if u can get erection using stimulation..using hand..then when having sex ur stimulating naturally...ur problem can also be psychological as well..as u seem to be convinced that u cant have sex even before attempting it..im not sure if u did or not...i failed first three attempts but finally could manage to penetrate....HOW MANY UROLOGISTS DID U VISIT??WHAT DID THEY SAY ABOUT YOUR SITUATION??DID THEY SUGGESTED PENILE IMPLANT??
third, u may have a kind of penile fracture...if u have then u just need to perform a surgery...
i also think i may have penile fracture..i get erection but my penis dsnt raise that high and also i cannot maintain my erection that much without stimiulation...here what i have shared my problem in one of the threads...

When I say stretched too hard I must of because I remember my penis immediately shrinking to a size of a peanut almost, and my dick felt really hard and serverely lacking bloodflow. It kind of looked like and felt like when you're dick shrinks a lot after going swimming but more extreme and it felt hard flacid. I don't think It was until an hour or so my penis somewhat went back normal (blood flow returned) but after then it hasn't been normal since. I do know that my penis was totally flacid when stretching though and I was pulling just above the glands. It never felt too much though but I obviously I must of overdid it...

Yes I'm a virgin at 26 years I have always had confidence issues with the opposite sex ever since I could remember but having ED is obviously the biggest factor here. I did try the same year I injured my penis (I was 21 then) to pay a prostitue in a brothel abroad to finally loose my virginity but the experience was pretty horrible and awrkard and I was as limp as anything, she couldn't get me hard I couldn't. In this case it probably was mental.

I understrand what you're saying I have never had sex and I'm claiming I can't perform however I am completely convinced after all these years (how can it all be in my head?) that I can't perform If I was in the position to like I said I have a weak erection, soft deflated head and rapidly lose any erection in seconds. I have these issues daily even solo masturbating so I have a good idea how sex would be and I would be a flop.

I don't think I have a penile fracture though becasue my erection angle goes straight up and if one truelly broke their penis they're would be pain and I never experienced any sort of pain when I injured my penis.

I have seen one uroligist I explained all the symptoms I had and I asked to have some tests done but he wouldn't do them I had blood tests done which all came back normal (although I can't remember what range my testostrone was in though). I'm thinking of seeing another uroligist soon but I'm not sure who is the best person to see how about this.

Mr ukguy, there was a dude on thunders place who had a soft head glans who got his veins striped which worked and last report i read was its been good for 4 years and counting. You have had what ever you got for 6-7 years and you have never been hospital, i dont care what you say venous leak you can not get hard without playing with it and you need to keep playing with it to keep it hard or it will die straight away. Put it this way i couldn't even get hard without touching it and when i did it was only a semi and this went on for weeks until with all the effort i put in pelvic floors and edging i got it back to normal but your case sometimes you do not even have to touch it which shows i was worse of, your talking about implants when in 6 years you have never been hospital. that is so fucking crazy. how can anyone advise you, anyway if you like to know about implants there is a site just like this but for people who have implants so you can read on how they feel ect but that's way of course, first step hospital and if anyone else reads this please advise him to go hospital

I know my post may seem a bit extreme but I have done my research and I have come to the conclusion I likely have Venous Leakage. Yeah I know I said a few weeks back I got good erections from kegeling and that is true but man it's weird becasue I do notice improvement doing them. However what I noticed is the shaft will remain normal and quite hard but the glands loose blood quickly and most often can't reach full size and firmness even with heavy physical stimulation. For example doing kegels in time will give me harder erections longer lasting but the glands are still deflated, small and soft but the shaft remains hard. To confuse things even more at times I still noticed even having harder erections from kegeling I couldn't hold an erection for hardly any sort of time. The fact that when I stop doing kegels even for a day or so my erection is back to being pretty weak and nonlasting which to me shows it's not a true fix at least in my case. Kegels seem to give me a slight "boost" in erection quality but the symptoms still remain.

I know a suggestion of a penile implant is a bit extreme as well but I have done a lot of research of ED many hours studying it and the raw truth is if you have a Venous Leak (which I'm cerain I do) there is very little that can be done to effectively cure it. This is not being negetive unfortunately at the present time it's reality until doctors have a bettter understanding of the condition. So what it seems is those who have Venous Leakage eventually have penile implants because the "leak" gets worse over time and sadly I do feel my erection quality and the ability to stay hard has got worse over time. Part of me still hopes I just have poor blood flow I think it's the case of blood not being able to stay trapped in my dick hence why I lose my erection quickly.

Sorry if posts aren't explained all that great it's hard to describe all this at times. If you want me to try and detail things better I will.

Thanks

[slaveking Member Find all posts View Profile Close slaveking]

man i think ur thinking too hardlyyy nd i understand why as i have same issue...one of your problem is blood flow...which means u have to work out and the reason why we get good erection after kegeling (i also started getting good erection..woodies after kegleing) cause it helps the flood flow...so it means there is something that is preventing the blood to circulate normally....
did u do stretching to ur penis or pelvic area???and how u did??like did u push ur pelvic floor muscles hard or used ur hand to stretch ur penis??i didnt get ur stretching part....and want to know what type of stretching u did exactly...
another thing i have noticed is that u have only visited one urologist...and the blood test is not enough....but u need to visit a urologist for sure and a private one would be much better...u pay and ask them to do a test...I really think u may have a psychological problem...i was also 100% convinced my problem is not psychological but now i also started thinking that i can be psychological but still not sure...i also didnt have pain in my penis but i still think it can be a small penile fracture in my case....
first think you should do is STOP THINKING ABOUT PENILE IMPLANTING...START THINKING ABOUT SEEING A UROLOGIST AND DO SOME TESTS..LIKE MR IMAGING..DOPLEX ULTRASOUND...
DONT YOU GET HARD WHEN YOU WATCH PORN??AND HOW OFTEN YOU WATCH PORN OR USED TO WATCH??ARE YOU TOO CONCERNED ABOUT YOUR ERECTION AND WHEN YOU GET ERECTION DO U FOCUS ON IT HOW HARD OR SOFT IT IS?? THE THING IS YOU HAVE TO STOP PAYING TO MUCH ATTENTION ON HOW ERECT YOUR PENIS IS BUT FEEL THE SENSATION OF SEX...LIKE IMAGINING YOUR HAVING SEX WITH A GIRL...DONT IMAGINE HOW WOULD YOUR PENIS BE BUT IMAGINE HOW GOOD IT FEELS TO HAVE SEX...
I REALLY SEE SIMILARITIES IN OUR THINKING...AND I CAN SEE ANXIETY AND TOO MUCH ATTENTION AND WORRY (PSYCHOLOGICAL) IS PLAYING A PART IN IT..WHICH IS SIMILAR WD ME AS WELL...YOU ARE FROM UK SO YOU CAN GO TO YOU ARE GP AND SHARE YOUR PROBLEM AND IF HE THINKS YOU HAVE A PSYCHOLOGICAL PROBLEM THEN HE CAN HELP YOU TO SEE A PSYCHOLOGIST WHO CAN HELP YOU MUCH BETTER AND ALSO CAN REFER YOU TO A GOOD UROLOGIST IF HE FINDS OUT YOU PROBLEM IS NOT PSYCHOLOGICAL...AND ALSO IF THEY DONT DO ANYTHING REGARDING YOUR ISSUE YOU CAN DO A MEDICAL NEGLIGENCE CASE ON THEM...SO YOU NEED TO START SEEING A GOOD UROLOGIST.....AND DONT PUT MUCH ATTENTION ON YOUR ERECTION AS WHEN I DO THIS I LOSE MY ERECTION VERY FAST AND I HAVE NOTICED THAT AFTER SUFFERING FROM OVER FOCOSING FOR A LONG TIME....
ALSO YOUR GP CAN PRESCRIBE YOU A VIAGRA AND YOU CAN TAKE IT AND CHECK HOW HARD YOU GET WHEN YOU TAKE IT..THOUGH I REALLY HATE THE IDEA OF VIAGRA AND EVEN MY GP SUGGESTED ME THIS AND GAVE ME PRESCRIPTION BUT IM TAKING SOME MEDICATION FOR MY DIFFICULTY IN PEEING SO I CANT TRY IT NOW.....I AM ALSO SEEING A PSYCHOLOGIST TO SEE IF MY PROBLEM IS REALLY MENTAL OR NOT...ALL THESE THINGS ARE FREE IN UK SO WHY NOT GIVE IT A TRY...MY GP REFERED ME TO A PSYCHOLOGIST AND IM WAITING FOR MY APPOINTMENT WHICH IS VERY UNLIKELY NOW..MAY TAKE TWO MONTHS AS IT SEEMS THEYR VERY BUSSYY...TAKE CARE...

[NP97 Retired ModeratorPEGym Hero Find all posts View Profile Close NP97]

You really should get more tests done.

[dsfan Senior Member Find all posts View Profile Close dsfan]

I agree with the guy above, dude before going for something like a implant you need to figure out exactly whats going on.

However that aside, not sure if ive ever seen any posts on here from young guys getting implants.