Overcoming Peyronie's, PremE, and HOCD (9 year battle)

[spartax Member Find all posts View Profile Close spartax]

Something I forgot to add earlier. I have gained tremendously by avoiding all news coverage, which I only started about 6 weeks ago. Without realising it I had become a news junkie as a result of working at home in front of the computer and the news is designed to keep you in a permanent state of anxiety.

For the last 15 years I have consistently failed to get anywhere near enough sleep, averaging 5-6 hours most nights, but when I dropped the news cold turkey I immediately started sleeping 8 hours a night consistently. The sleep alone is hugely beneficial for your health, but staying away from the news makes you less fearful and anxious about things you cannot even change and usually have no impact on your life.

After a month like this I noticed I was much less anxious and started making better decisions. I would liken news coverage to porn in the way it messes with your mind. If something is really important somebody will tell you about it and unless you are living in a cave you will inadvertently see or hear some of the news, but deliberately switching on the TV or reading papers because of some self imposed need to hear the latest piece of fear propaganda is just not good. I wish I had learned this at 18 rather than at 48.

It's not easy giving up the news like this and the compulsion to keep checking will be strong, but the benefit of stopping is huge. Along with news I include current affairs programs, political commentary and anything similar.

After a couple of weeks your thinking will become more focussed and it's a positive step towards a whole series of more positive habits like practising gratitude every day as a deliberate act. If you do switch on the radio or TV and the news starts you'll find yourself quickly changing channel with a shudder. On a slightly philosophical note I also started to reject the idea of other people telling me what I should be afraid of.

[Mlathem Junior Member Find all posts View Profile Close Mlathem]

Hey Spartax I have Peyronies anyway you could help me?

[spartax Member Find all posts View Profile Close spartax]

I can try, but no two cases are identical. All I can advise is what has helped me and what hasn't. I'm still not 100% free of Peyronies, but much better than I was.

[pawpaw6060 Senior Member Find all posts View Profile Close pawpaw6060]

There is a new procedure urologist can do but it has to be one that is trained on it not just any can do it it has to be one that is trained before they allow him to do it tbey ise xiaflex they use this for many years for correcting curvatures of the hands and joints and stuff they found it it correct Peyronie's I had it done the user takes two injections to do it there's no pain

[Mlathem Junior Member Find all posts View Profile Close Mlathem]

Thanks for the quick reply man, I'm trying to follow your natural route with the no masturbation. I've tried everything from stretching, jelqing, ved, bath mate, light massage, all to no avail. Mine is super inflammatory and it's still been 15 months since he onset. I've also tried the stretching device recently and I was getting better before that by juicing and not touching it but now I've re inflamed the issue 😬.

[spartax Member Find all posts View Profile Close spartax]

In my experience, anything that involves physical stretching or manipulation is very bad news. I actually started with zero deformity, but there have been two things that caused me major damage in the past. The first was the VED after following advice from some old man on the Peyronies forum, who kept insisting it was a miracle cure. The second was a urologist who applied heavy pressure to scarred areas during exams.

I've heard a lot of things about the inflammatory stages passing after a year or so, but to an extent I still feel like I am there after 5 years, so it can be affected by diet, stress, lack of sleep and physical contact. If I do everything correctly it's really jelly like and hard to detect, but if I sit there and squeeze it a few times that softened area will gradually become harder and more defined. It covers quite a large area.

At the moment I am experimenting with a combination of castor oil and iodine as my main treatment, but I'm continuing with magnesium and evening primrose oil. I am convinced this is something that can be beaten through nutrition, lifestyle and avoiding further damage.

All the conventional treatments for Peyronies only made my condition worse. At one stage my curvature was well over 90 degrees and completely mangled with twists and narrowing. Now it's closer to 10 degrees, but I still have to be careful. If I knew at the start what I know now, I probably could have beaten this in a few months.

[spartax Member Find all posts View Profile Close spartax]

There is a new procedure urologist can do but it has to be one that is trained on it not just any can do it it has to be one that is trained before they allow him to do it tbey ise xiaflex they use this for many years for correcting curvatures of the hands and joints and stuff they found it it correct Peyronie's I had it done the user takes two injections to do it there's no pain

How did the Xiaflex work for you? I've heard good and bad accounts like most things treatments with Peyronies. My understanding was that it can achieve a 30% improvement in curvature and is only administered in certain circumstances, so not everybody qualifies medically.

Here in the UK I've felt really let down by the doctors I've seen. The first GP just looked at me like I was a leper and rushed me out of his surgery after a couple minutes. Two months later an NHS urologist simply said "there is no cure, accept it" and he actually seemed to enjoy that.

Eventually I went to an expensive private urologist on three separate occasions. At the last appointment he applied so much pressure during examination that it caused huge damage and I could barely sleep for the next 2 weeks from the pain it caused. It took months for the effects of this just to calm down and it put me off doctors completely. I think he was hoping for a nice pay day with an expensive surgery.

All of this was back in 2013 and I've basically been on my own since then. I've avoided places like the Peyronies forum that was generally counterproductive.

[Jimi77 Junior Member Find all posts View Profile Close Jimi77]

Spartax, I thought I had peyronies after an injury to my errection. The injury happened about 2 months ago and I had suspected it to be a minor penile fracture, but didn't have the typical symptoms like swelling, bruising or deformity.

I did however notice 2 cord like veins. One going towards the left, and one that's bigger going towards the right.

About 3 weeks after the injury I noticed a curve to a nocturnal errection that was at least 30° and I took a pic to show the doctor. After showing him, he could definitely see deviation, but couldn't confirm it to be peyronies, just some scarring. He didn't seem all to knowledgeable about peyronies.

During examination, he was pressing quite hard on the right side of my penis around the glans, and around the middle. I thought for sure there was a lump, just under the skin and was really small. He said he couldn't feel any lump.

After this I feel more pain in my penis that wasn't present before I went to this appointment. He was pressing harder on my penis than I ever have since the injury.

[pawpaw6060 Senior Member Find all posts View Profile Close pawpaw6060]

The xiaflex work good for me usually you do two procedures I did one I was the first one they did it on it's a lot straighter than it was it made a big difference but it has to be a urologist that especially trained on it most urologist do not know about it and never heard of it and are not allowed to perform it so they have to be specially trained to be able to do it

[spartax Member Find all posts View Profile Close spartax]

@Jimi77 Stories like this make me so damn sad. Average doctors are completely clueless about the condition and most urologists just don't seem to care. They would if it happened to them.

It's not unusual with Peyronies for the location of scarring to apparently grow, reduce or move entirely. It's beyond me why doctors think that applying huge pressure just to feel a lump in any one moment will help in any fashion whatsoever. It is just going to make a bad situation 1000% worse and I remember that urologist at Bristol Urology telling me not to worry, because it couldn't hurt... Having lived with the consequences of his examination for years I know he is wrong.

I cannot tell you for sure if you have Peyronies, but it does sound like it. Please be careful and avoid any direct pressure. You'll need to speak with a urologist who specialises in Peyronies for a clear diagnosis, but make it clear they must be gentle. In the meanwhile try to avoid all inflammatory foods and practices.

[PointyStick Senior Member Find all posts View Profile Close PointyStick]

Spartax, I thought I had peyronies after an injury to my errection. The injury happened about 2 months ago and I had suspected it to be a minor penile fracture, but didn't have the typical symptoms like swelling, bruising or deformity.

I did however notice 2 cord like veins. One going towards the left, and one that's bigger going towards the right.

About 3 weeks after the injury I noticed a curve to a nocturnal errection that was at least 30° and I took a pic to show the doctor. After showing him, he could definitely see deviation, but couldn't confirm it to be peyronies, just some scarring. He didn't seem all to knowledgeable about peyronies.

During examination, he was pressing quite hard on the right side of my penis around the glans, and around the middle. I thought for sure there was a lump, just under the skin and was really small. He said he couldn't feel any lump.

After this I feel more pain in my penis that wasn't present before I went to this appointment. He was pressing harder on my penis than I ever have since the injury.

Maybe I'm wrong but wouldn't Peyronie's appear MUCH sooner from an injury than 3 weeks? In the real cases of Peyronie's I've seen scar tissue appears just 1-3 days after injury.

[spartax Member Find all posts View Profile Close spartax]

Maybe I'm wrong but wouldn't Peyronie's appear MUCH sooner from an injury than 3 weeks?

The problem is identifying when it first starts and everybody will experience a different rate of progress, depending on the original injury and other factors, such as stress and diet etc. In my case I originally had a couple small nodules, but zero deformity until a couple days after I saw that second urologist who pressed too hard. At that point I'd already had Peyronies for a good 3 months and possibly longer.

My first symptom was an erection that suddenly deflated around the middle without any warning and that had never happened before. Then I could remember times when it felt icy cold, which was agony and it would become painful when erect. It wasn't a good time and the first couple of years were hell. All of this can affect other areas of your life, such as your work and marriage, so it should be treated with all due care and attention.

[Jimi77 Junior Member Find all posts View Profile Close Jimi77]

@Jimi77 Stories like this make me so damn sad. Average doctors are completely clueless about the condition and most urologists just don't seem to care. They would if it happened to them.

It's not unusual with Peyronies for the location of scarring to apparently grow, reduce or move entirely. It's beyond me why doctors think that applying huge pressure just to feel a lump in any one moment will help in any fashion whatsoever. It is just going to make a bad situation 1000% worse and I remember that urologist at Bristol Urology telling me not to worry, because it couldn't hurt... Having lived with the consequences of his examination for years I know he is wrong.

I cannot tell you for sure if you have Peyronies, but it does sound like it. Please be careful and avoid any direct pressure. You'll need to speak with a urologist who specialises in Peyronies for a clear diagnosis, but make it clear they must be gentle. In the meanwhile try to avoid all inflammatory foods and practices.

Yeah he was grabbing/pinching pretty hard around the glans. Much harder than I ever did. Now that's not good at all. That appointment seemed rather pointless because he only examined me for maybe 10 minutes then I was out of there. He couldn't provide me much information about peyronies except that it could be treated with verapamil injection if the lump increase or if the curve increases over time.


The first time I went to this uro, about 2 weeks after initial trauma, was also slightly painful while palpatating the base area checking for defects. A week after this I noticed a significant curve to a nocturnal errection. Since that though my errections appear to be straight. So considering these factors I'm not going to assume it to be peyronies. I really hope he didn't cause any other long term damage to my penis.

[spartax Member Find all posts View Profile Close spartax]

If it's gone straight again that's a really good sign, assuming it hasn't significantly shortened. Sometimes you end up with scarring on two sides, which draws it straight, but with an overall loss of length.

I swear some of these doctors are idiots. I mean seriously, if somebody came in there with a major scar on their arm or leg would they spend the next 10 minutes squeezing it as hard as they could?

I also have the veins you mentioned and they appeared soon after the Peyronies started. I think it's just the body's way of forcing blood to the location and help with healing. It could well be that you've experienced a trauma that has not developed into full blown Peyronies. Concentrate on avoiding inflammatory foods like sugar. Ginger is an excellent anti-inflammatory.

Also consider rubbing some magnesium oil on your body. Make sure you get plenty of sleep and avoid stress. There is a good chance you'll reverse this without it going further if you play this right, but damn these doctors annoy me.

N.B I know it's difficult, but leave the scarring well alone. Nothing hurts more than constant handling, which includes sex or masturbation at this point.

[Jimi77 Junior Member Find all posts View Profile Close Jimi77]

Thanks for the advice I'll go get some ginger and I don't really ingest that much sugar. I quit dr