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  • Hey guys, an update.
    So nothing has changed for me at all. Now I showed my physio pics of my erections while my penis is straight lying down, it flops when standing up. Obviously since urologists know I can get an erection regardless of quality etc they says it normal. My physio said he can see what I mean that my erections look tight under the glans the skin under the glans is being stretched.

    Now low and behold the other week I tried an erection and it is not curved but the right side has like a bump that makes the penis sit at an angle. So not a classic Peyronie's disease and the other day my penis was erect straight but all to the left from the base with a flop.

    My physio saw the first picture and said something is wrong with the fascia or tissue and he doubts I have cpps now. He thinks there is def a penis issue not classic pelvic floor dysfucntion. He also thinks since the MRI didn't show anything it can't be classic peyronies, but It is fascia or tissue related problems nearer the skin. My view all among.

    I will gather some more pics and send them to the uselessologists now that I have some proof something is wrong that they can't deny. Again guys my other issue is that my penis doesn't sit the same way or feel the same when flaccid and it's so uncomfortable that's a real pain and still an inflamed meatus.

    In the meantime I wanted to tell some of you that you might want to try meditation for controlling negative thoughts, stress and depression. I do daily Skype sessions for free and it's Vipassana mediation (just thought I would let you know about it).

    We can't post penis pictures on this forum right? I just thought sharing pictures would be beneficial for others to relate to and have more meaningful discussions.

    Makarinio123

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    • Originally posted by makarinio123 View Post
      ...We can't post penis pictures on this forum right? I just thought sharing pictures would be beneficial for others to relate to and have more meaningful discussions.

      Makarinio123
      You can post pics in your photo album here...

      https://www.pegym.com/forums/members...activitystream

      ...then link to them in your post.
      The name's Tamora...TVR Tamora...with a capital "T".

      Lots of living to do yet unseen and a more stories yet untold!

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      • .
        dingledong
        Junior Member
        Last edited by dingledong; 07-24-2018, 01:26 AM.

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        • Originally posted by dingledong View Post
          Ok makarinio123, answer me this:

          How come people who get injections in their dick for erectile dysfunction and whatnot never have to worry about having a "hole" from the needle in their colles/dartos fascia? What makes them different and your case legitimate?
          An injection does not make a hole, it makes a prick. I have had two having done 2 MRIs so one can't compare a tear or rupture with a prick of a needle. Just like you can get blood samples taken with a needle in your vein and arm or anywhere with minimum invasion. I am sure you have had a blood test before or something similar. Also the doctors are giving a person injections for ed as the patient was at least diagnosed with ed. An injection does not tear anything. (People that do Acupuncture also have no issues).

          I don't have ed and I also get erections but this does not mean my penis is fine? I never said one can not get an erection with a fascia tear/rupture. However, erections mimic inflamation and are uncomfortable, heavy etc which has to mean there is a a structural issue. My penis even flaccid is uncomfortable and does not sit right.

          If you see my previous posts on this forum you will see that I had my own theory for a long time and have been extensively tested and seen many doctors. However, while I have no diagnosis I have eliminated things. All this left me with is my theory which has yet to be refuted with any evidence or test. Simple fact is that urologists do not know much about (the superficial fascia, aerolar tissue and bucks fascia). When I spoke with my urologist in London he admitted he has never diagnosed anyone with a fascia tear or rupture, and was silenced when I said if he has never diagnosed it how can you know the symptoms? He can only in "theory" say. Me being an academic myself, "theory" is not even the word it's a hypothesis that he has and it has not been tested to show if the theory holds in practice.

          Even when guys on this forum told me about pelvic floor dysfunction, I went to a good physio therapist and have been working with him for a few months now and he doubts that's the problem and he has treated men with this before. So I have eliminated that also. By process of elimination my theory is one of the only ones left.

          In advance....I don't mean to sound like I am arguing and I do not intend to. I have seen forums that go on and on bashing each other. All I have intended with my posts here is to document my experience and to engage in meaningful conversations.

          Ps In my first few months when I had really bad penile pain (so bad I was constantly on pain killers). Urologists couldn't even explain what that pain could have possibly been (zero ideas).

          Makarinio 123

          Comment


          • Your theory has not been refuted nor has it been proved.

            Now if the doctors cannot see anything wrong what exactly do you want them to fix and how do they fix it?
            The world's still a toy if you just stay a boy!

            Comment


            • Originally posted by makarinio123 View Post
              Ps In my first few months when I had really bad penile pain (so bad I was constantly on pain killers). Urologists couldn't even explain what that pain could have possibly been (zero ideas).
              In unfortunate cases like this the best option is to request to see a specialist. Opting for a second opinion or even seeing another uro may get you more of the same- and more unnecessary delays.

              NOTE- The above is not to be construed as medical advice!
              Want a FREE Month of Coaching? PM or email me for details- or CLICK HERE

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              • Originally posted by CUSP82 View Post
                Your theory has not been refuted nor has it been proved.

                Now if the doctors cannot see anything wrong what exactly do you want them to fix and how do they fix it?
                I will keep knocking on doors until I find a doctor that CAN see.

                Comment


                • Okay that's an idea.
                  The world's still a toy if you just stay a boy!

                  Comment


                  • Originally posted by Big Al View Post
                    In unfortunate cases like this the best option is to request to see a specialist. Opting for a second opinion or even seeing another uro may get you more of the same- and more unnecessary delays.

                    NOTE- The above is not to be construed as medical advice!
                    Thanks Big Al. I will keep trying to find a solution.

                    Comment


                    • Originally posted by makarinio123 View Post
                      Thanks Big Al. I will keep trying to find a solution.
                      Thanks- and the best of luck to you!
                      Want a FREE Month of Coaching? PM or email me for details- or CLICK HERE

                      The MeCoach Male Enhancement Coaching Service- For All of Your Male Enhancement Needs

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                      • well guys I've had problems like this for years hell I don't even know anymore late 2010, 2011 2012 depending on what problem we are talking about and as much as I hate to say this I think we are fucked and here's why there is no money in this to investigate and find a cure how about people have something like this 1,000 maybe that's nothing not how many pe ople have ED a lot so doctors just write them a script for cialis or viagra plain and simple and make money, heck you may have a Dr play along cut you open and do a whole lot of nothing and charge you thousands of dollars

                        frankly they just don't give a fuck to put it bluntly its a sick sad fucked up world and put now I'll share my theories I went pelvic floor specialist ( well technically 4 but 2 different places) and my penis never really got that much better it got a little better I suppose (a few years ago I got surgery for buried penis I should mention) but no miracles and I also have testicle issue and hormonal problems so why I'll be the first to admit I didn't listen to my PT's advice like I should have , I really am hoping another round of pelvic floor therapy cures my issues though I certainly am not holding my breath on it

                        see I heard a snap while masturbating so I believe I may have suffered a penile fracture though 2 maybe 3 dopplars came up negative , they say if everything already healed then it will look normal because I didn't get my first dopplar until maybe 1 and half years after the snap or pop

                        I went to my first pelvic floor specialist and wasn't getting the results I thought I should of been getting so I did some trigger point therapy in my perineal region probably way too roughly so I think that messed me up as well

                        what I am trying to say is first every bodies injury may be different to an extent and pelvic floor therapy is a somewhat easy option (though not every easy at all really if that makes sense) markino from what you have said I truly believe you have pelvic floor issues if you are in serious pain , possibly other issues as well

                        and I'm not righting off the torn colles fascia because out internal penis is in our perineal region along with the internpundal arteries which supply blood to the penis and the testicles ( hence the cold penis and testicles)

                        hell my penis doesn't even really get hard when I use a penis pump so problem with the suspensory ligament could be an issue for myself and other sufferers such as you guys ( I don't think dopplars pick that up I could be wrong though) that should be looked into though

                        and my perineal region sometimes vibrates (if you will) plus obviously the internal penis is in there as well so something torn in the perineal region (colles fascia , bucks fascia , I really have no idea really) MRI's dopplar urologists have pretty much told me there is nothing they can do and no such surgeries exist for the perineal region yet many men have surgery on perneal region's quite a bit through impalement accidents

                        so I think that may be something to look into MRI, x ray , dopplar on Colles fascia or perineal region in general

                        but like I said part of me want to remain positive the problem seems so simple sometimes but yet so hard, I really don't have a whole lot of faith in doctors or the medical community in general to tell you the truth we may all be fucked though there is a part of me that doesn't think so and has some faith but I'm not holding my breath on anything that's for sure and to be honest I really don't know a whole lot some of you guys seem a little more advanced in medicine and anatomy then I am so we will see what happens

                        and cheap alternatives hasn't worked for me yet but may work for some of you guys epsom salt, laser pointer, tennis ball to roll on perineal area, and a wand for rectal trigger points

                        some of you guys have had imaging done on your colles fasica, pelvic floor, and perineal area though am I correct in saying this?

                        Comment


                        • and for some of us why not try a priapus injection and or other stem cells just a thought heck it might make some of you gentlemen better I'm no fortune teller,

                          although this is going to sound weird I know but at times I feel as if something may be guiding me to an extent I don't know and I have a house camera and when I look at the live feeds a few times light like things ( I don't know) will bounce across the screen I don't know so I actually have a little bit of faith though at the same time I sure as heck aren't holding my breath but for some reason I can't explain I have a bit of confidence if that makes sense but yeah as far as the medical community goes well we all know how that goes so we see what the future holds

                          Comment


                          • Originally posted by jonyoung View Post
                            and for some of us why not try a priapus injection and or other stem cells just a thought heck it might make some of you gentlemen better I'm no fortune teller,

                            although this is going to sound weird I know but at times I feel as if something may be guiding me to an extent I don't know and I have a house camera and when I look at the live feeds a few times light like things ( I don't know) will bounce across the screen I don't know so I actually have a little bit of faith though at the same time I sure as heck aren't holding my breath but for some reason I can't explain I have a bit of confidence if that makes sense but yeah as far as the medical community goes well we all know how that goes so we see what the future holds
                            Sorry to hear your struggles. I guess when you've had something for that long, you gotta try to learn to accept it and learn to live best with it. How are your erecfions? How does biagra and cilias work? Id use those if they help with erecfions. I have HF too but get erecfions pretty well...if I didn't I'd probably use cialis and viagra

                            Comment


                            • Originally posted by jonyoung View Post
                              and for some of us why not try a priapus injection and or other stem cells just a thought heck it might make some of you gentlemen better I'm no fortune teller,

                              although this is going to sound weird I know but at times I feel as if something may be guiding me to an extent I don't know and I have a house camera and when I look at the live feeds a few times light like things ( I don't know) will bounce across the screen I don't know so I actually have a little bit of faith though at the same time I sure as heck aren't holding my breath but for some reason I can't explain I have a bit of confidence if that makes sense but yeah as far as the medical community goes well we all know how that goes so we see what the future holds
                              Hey jonyoung,

                              I am sorry to hear about your troubles also. I agree with a lot of your points. Uselessologists dont care, not curious, and even worse they do not acknowledge a problem. They would rather throw pills at you or say it's in your head.

                              Most frustrating is that when it comes to fascias and areolar tissue uselessologists shy away from this or they say in theory it can't be with no tests or any evidence whatsoever.

                              My physio is supportive and we had a long chat yesterday. He has an excellent reputation and been doing this stuff for years. He is sure having gone through my events again, treatment with him and showing him pictures while him seeing my penis that there is something definitely worng with the penis. We see eye to eye about the fascia. But even leaving the fascia aside he is bewildered that uselessologists can't see there is something worng, but not suprised as he has had a bad run in himslef with them when trying to tell them about hard flaccid and cpps and offered to work for free on a Wednesday with them and they were not interested.

                              Have you ever heard from dfg245 who had a torn bucks fascia (after seeing multiple uselessologists who said everything was normal) and went to Serbia to have an operation and proved his fascia was torn. He seems to have vanished and it's a shame as he had some really good insights. I tried to get in touch with him, but he never got back to me. Meanwhile I am waiting for the Serbian dr Miro to get back to me for a Skype conversation. I wanted to ask him about my case and about dfg245's operation to get some insight. I believe you posted on that forum before and engaged with him. Here is the link again.

                              https://phalloboards.websitetoolbox.com/post/torn-fascia-7053780

                              Comment


                              • Originally posted by jonyoung View Post
                                well guys I've had problems like this for years hell I don't even know anymore late 2010, 2011 2012 depending on what problem we are talking about and as much as I hate to say this I think we are fucked and here's why there is no money in this to investigate and find a cure how about people have something like this 1,000 maybe that's nothing not how many pe ople have ED a lot so doctors just write them a script for cialis or viagra plain and simple and make money, heck you may have a Dr play along cut you open and do a whole lot of nothing and charge you thousands of dollars

                                frankly they just don't give a fuck to put it bluntly its a sick sad fucked up world and put now I'll share my theories I went pelvic floor specialist ( well technically 4 but 2 different places) and my penis never really got that much better it got a little better I suppose (a few years ago I got surgery for buried penis I should mention) but no miracles and I also have testicle issue and hormonal problems so why I'll be the first to admit I didn't listen to my PT's advice like I should have , I really am hoping another round of pelvic floor therapy cures my issues though I certainly am not holding my breath on it

                                see I heard a snap while masturbating so I believe I may have suffered a penile fracture though 2 maybe 3 dopplars came up negative , they say if everything already healed then it will look normal because I didn't get my first dopplar until maybe 1 and half years after the snap or pop

                                I went to my first pelvic floor specialist and wasn't getting the results I thought I should of been getting so I did some trigger point therapy in my perineal region probably way too roughly so I think that messed me up as well

                                what I am trying to say is first every bodies injury may be different to an extent and pelvic floor therapy is a somewhat easy option (though not every easy at all really if that makes sense) markino from what you have said I truly believe you have pelvic floor issues if you are in serious pain , possibly other issues as well

                                and I'm not righting off the torn colles fascia because out internal penis is in our perineal region along with the internpundal arteries which supply blood to the penis and the testicles ( hence the cold penis and testicles)

                                hell my penis doesn't even really get hard when I use a penis pump so problem with the suspensory ligament could be an issue for myself and other sufferers such as you guys ( I don't think dopplars pick that up I could be wrong though) that should be looked into though

                                and my perineal region sometimes vibrates (if you will) plus obviously the internal penis is in there as well so something torn in the perineal region (colles fascia , bucks fascia , I really have no idea really) MRI's dopplar urologists have pretty much told me there is nothing they can do and no such surgeries exist for the perineal region yet many men have surgery on perneal region's quite a bit through impalement accidents

                                so I think that may be something to look into MRI, x ray , dopplar on Colles fascia or perineal region in general

                                but like I said part of me want to remain positive the problem seems so simple sometimes but yet so hard, I really don't have a whole lot of faith in doctors or the medical community in general to tell you the truth we may all be fucked though there is a part of me that doesn't think so and has some faith but I'm not holding my breath on anything that's for sure and to be honest I really don't know a whole lot some of you guys seem a little more advanced in medicine and anatomy then I am so we will see what happens

                                and cheap alternatives hasn't worked for me yet but may work for some of you guys epsom salt, laser pointer, tennis ball to roll on perineal area, and a wand for rectal trigger points

                                some of you guys have had imaging done on your colles fasica, pelvic floor, and perineal area though am I correct in saying this?
                                Stop writing all these shit that can freak out people to give up faith on doctors.
                                You heard a snap or may be had a penile fracture!! Ha ha you didn't experience unbearable pain,u didn't have any inflammation.And after couple of years you got a Doppler when uro said it must have healed. Even a false fracture will keep u in excruciating pain.
                                You can't get errection even with a penis pump,then what are you waiting for? Stem cell therapy,just go and get a penile implant which ever type is suitable instead of wasting your time and money in cure which you must have been trying for decade with no success.
                                Let me tell you none of the guys here is adept to medicine or anatomy,all are just a freaked out patient like you and everyone just speculate and try out things of which medical community has no clue.I am also one among them.

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