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Overcoming Peyronie's, PremE, and HOCD (9 year battle)

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  • Thanks for the reply although we are seeming to go around in circles chatting to people who understand helps alot as i'm constantly depressed although thats because of other things too. I mean i'm not trying to create an xfactor sob story here because there's people way worse off but like for about a year especially when i go to bed i procrastinate and think about not wanting to live and just hoping i'll go to sleep and not wake up... is that classed as depression or do you need to be like cutting yourself... i don't really know the norm anymore... (don't worry i'm not going to do anything it's jsut me feeling bad for myself which in all fairness i think i have the right to) although recently it's been better since discussing my problems to you guys online because i guess there is hope. I mean it sounds stupid and all 30 degrees curve and needing a circumcision... but i mean the thing is awkward enought o masturbate with and you know gossip with teens if i was to have sex with a girl who wasn't exactly respectful she could go and say stuff etc... although i really doubt that it's more the not wanting to meet a girl, make her happy then be a disappointment.
    And that certainly is a miracle, i bet the doctors just gave you the cold shoulder after instead of asking more about how you fixed your problem.
    If i can't naturally fix my curve and it's congential and not peyronies i think i will have surgery just because i don't want to limit sex positions and my penis is about 7 inches so if i did loose 1-3 cm it wouldn't be the end of the world... and a small chance of being impotent... i'm willing to take that risk because i'd rather take a risk and have a nice life then live with a penis like mine which i know will hold me back. I read a post about a guy who had peyronies who knew about the problem at aged 20 and saw a doctor who said come back and he never did and he's like 36 still a virgin.
    I guess 30 degrees isn't so bad but considering it also goes left about 5 degrees and is around 5.8inch girth and 2 inches wide that is likely to be uncomfortable for a girl.
    One last edit... phimosis is fairly rare maybe 1-2% boys have trouble pulling back their foreskin at 17, over 95% can correct this with masturbation or stretching etc. Then peyronies is like 1% of men and it happens very rarely for people as young as me. Someone up in the sky REALLY does not like me, thats all i'm saying.
    Last edited by stevew; 05-29-2014, 07:29 PM.

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    • It's quite normal to feel confused and worried at this stage. Then with all these questions and doubts about the future it's no wonder men become depressed at times but a positive mental attitude is essential. I curse the amount of time it takes to get an appointment through the NHS like this, which is why I immediately looked for a private urologist afterwards and saw him 24 hours later.

      Sometimes I think it's hard enough just being your age with so much going on but for your own sake please try to calm down and accept that there will be a period of uncertainty. The best thing you can do frankly is to keep busy so your mind is occupied by other matters like your studies while you are waiting to see the doctor. Forums like this can be helpful but as I learned they can also be a curse if you find yourself obsessing about the condition for hours on end and trawling the internet randomly looking for solutions when you don't even understand the problem.

      My advice would be to leave your penis well alone and keep busy with the rest of your life while you are waiting to see the doctor. Try to live as healthily as possible and avoid reading horror stories from others. They aren't you and it doesn't mean your experience has to be anything like as bad.

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      • Thanks alot for the support. Yeah i kind of knew in the back of my mind i should be doing this but it's almost too tempting just to go and search up about it to give me more hope. But yeah i've stopped looking things up.

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        • +100 for all of spartax's comments. I feel the same way and would give the same advice.

          - You really should let someone in your life know what you are going through. This is hugely IMPORTANT. I don't care who it is, but someone.

          - Stop thinking about surgery and get healthy. The human body operates on another level when you give it a proper diet, yoga, and meditation. You may see things happen you didn't know were possible. But it takes time. Not a month. Not two months... TIME.

          - Build your confidence through getting healthy (the above mentioned modes). Ditch the weight lifting man. Do cardio, yoga, and bodyweight training if anything. You can get ripped doing yoga and soothe your muscles all at the same time.

          - ALSO, build your confidence through Cognitive Behavioral Therapy (CBT)...essentially "mindfulness" (seek out a therapist if you can afford one). Try to overcome the negative, self-doubting, self-pitying thought processes and say NO I'm gonna replace that thought with positive, self-motivating, loving, and joyful thoughts because THAT my friend, is going to heal you far more purely and deeply than any surgery or medicine.

          I have no doubt you can be a fully operating sexual male in the coming future. You just gotta decide to take it in your hands and walk that path...not the western materialistic "quick-fix" path. It just won't work...

          Good luck man,
          Voodoo
          VoodooChild
          Senior Member
          Last edited by VoodooChild; 06-01-2014, 10:19 PM.
          "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
          -Voodoo
          therebornman.tumblr.com

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          • I mean i've started doing squats to improve my pelvic floor
            By the way, doing squats does not improve the pelvic floor. In most cases it creates more and more tension. Doing yoga improves the pelvic floor. And once it has been practiced long enough, more strength exercises like squats can be reintroduced gently. But at that point you will have a better understanding of what "tension" really feels like. I can pretty much guarantee you are not fully aware of how much tension is lying dormant in your body... particularly the pelvic floor.
            "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
            -Voodoo
            therebornman.tumblr.com

            Comment


            • On the subject of tension in the body I've recently started doing TRE (trauma release exercises) and you literally find your whole body shaking quite violently at times as it releases past traumas. It starts in the pelvic area where most trauma is centred in the body, so you might want to check it out. They only take 15-20 minutes and all you need is a room with a clear wall and enough space to lie down without being disturbed.You can see examples on Youtube.

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              • That would explain why its getting worse. Ok i will do the yoga stretches. Which ones are best? My hard flaccid like comes and goes... as in it's not their all the time but it's definitely more heavy then usual. I had pretty bad bloating for a while which swelled up my pelvic area due to other reasons. I think thats made it worse. I shall do those yoga stretches.

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                • That sounds scary. I may do the stretches for now but i will check it out.

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                  • Originally posted by stevew View Post
                    That sounds scary. I may do the stretches for now but i will check it out.
                    I had the first signs of Peyronies not long after I started doing kettlebell swings with a heavy weight. These involve a swinging motion from a squat to standing upright in a fast explosive action and I can remember it felt strained down there at the time. All in all it felt like great general exercise but I honestly believe they did me some serious damage.

                    I asked the doctors if it was possible that the kettlebell swings might be responsible and they looked at me as though I was mad. Then I asked on the Peyronies forum where nobody could see the connection, so I tried a quick session of 20 swings and I may as well have tied the weight to my penis judging by the amount of damage it did. Not long after I took the kettlebell to a recycling centre and vowed never to do it again.

                    Voodoo is right. Gentle stretching is good and I only wish I had started a long time ago but these squatting type exercises with heavy weights make it much worse.

                    On a side note I had a 2nd session of Bowen therapy on Saturday and it can often take 24 hours for the treatment to settle but on Sunday afternoon I suddenly had incredibly painful testicles, particularly on the left hand side almost as if I had been kicked hard and they were sensitive to touch. This lasted about 30 minutes but the next time I got an erection it was near as damn it completely straight. Literally about 5 degrees of upward curvature and only near the end tip. The day before the woman doing this had released a tendon on the left hand side that hurt like hell and perhaps it's a coincidence but I think it all points to this connection with the pelvic area.

                    My advice if you have been doing squats would be to stop now and then leave several days just for everything to really calm down. Only then perhaps start doing very gentle stretches. After the squats it will all be very tight down there so don't force anything too far the other way.
                    Last edited by spartax; 06-02-2014, 12:35 PM.

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                    • Yeah i also did revere kegels and when i woke up my penis was like occasionally went into hard flaccid form. So i'll stop any kind of excercise. Say in 3 days time i should try pelvic floor stretches and do them for about 5 minutes per day? I also noticed a occasional sharp pain when rubbing my penis which seemed to feel like i tendon was being pulled. My pelvic floor does seem to kind of swell out too.
                      What is this Bowen therapy and do you think balancing my pelvic floor may improve my downwards curve?

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                      • Frankly I'd give it longer than 3 days. No harm will come from leaving it well alone to gently calm down and then slowly start with very gentle stretching exercises later on. Bear in in mind that I didn't start until very recently and I would say you need to be careful about pretty much everything during the early stages of chronic inflammation if you have Peyronies. Applying time measures to exercises is pointless. Judge it more on whether it feels uncomfortable and if it does back off.

                        Bowen therapy is a form of physio therapy and basically just an alternative to something like going to a chiropractor. One big plus about Bowen therapy is that it's very gentle and there are no rough moves. They massage the muscles and tendons back into place but you need to find somebody qualified with lots of experience. It's good for aligning different parts of the body so everything is properly balanced. I can't say for sure it would help in your case but it may do.

                        Judging by my current progress I think I could effectively be Peyronies free inside a month or two if I avoid doing anything stupid and nothing unlucky happens. My curvature is now around 5-10 degrees, having once been almost 90 degrees and I have no problem getting erections but I've definitely lost some size, which I hope will improve as it relaxes down there.

                        It's a battle for sure and you can't take anything for granted but you have such a huge advantage with youth on your side. They say that something like 10% of men see a natural reversal of Peyronies but I strongly suspect the vast majority are younger men. I'm 46 but a very young 46 in many ways. I've never drunk alcohol or smoked and my weight is the same as when I was was 18. Most people think I'm in my early 30s.
                        Last edited by spartax; 06-02-2014, 02:53 PM.

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                        • Thanks alot for the reply! Just to clarify when i say stretches we are talking about the pelvic floor not PE right? It's jsut when you said no harm will come by leaving it alone it sounds as if your talking about the penis or are you talking about the pelvic floor? How did you take your curvature down so much? Is that by it naturally going down or by the pelvic floor therapy?
                          Thanks again!

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                          • Voodoo can probably weigh in here with more information. My understanding is that squeezing the PC muscles will help strengthen your erections but it will actually tighten the pelvic floor and this is done by squeezing the same muscle as if you were trying to stop the flow while urinating. I can do these but tend to feel a bit of inflammation afterwards, so I've been largely avoiding them.

                            The opposite is when you push the same muscle as though trying to increase the flow while urinating. That tends to stretch the pelvic floor and I find it reduces inflammation. Actually I find the best time to do it is simply whenever I go to the toilet rather than planning exercises.

                            Apart from this I do some general stretching exercises, such as bending on one knee to physically stretch the area around the pelvic floor and tops of the legs. Under NO circumstances would I recommend stretching of the penis itself.

                            My curvature came down mainly through a process of diet and leaving it alone but seemed to stall at a certain point. Recent stretching exercises appear to have helped unblock that and allow the inflammation to further subside, which in turn is helping to clear up the scarring. I have always had insanely tight hamstrings so it wouldn't surprise me in the least if connected areas are also tight and in need of stretching.

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                            • Wait so when i urinate i should try and force it out. This is kinda of what i have to do sometimes. Like i will be peeing and their will be some left i need to squeeze out which i do by tensing my pelvic floor. Thing is i'm pretty sure i've done that before mainly because i can't fully pee otherwise so i'm not sure if that will make a difference? I mean my pelvic floor isn't always inflammed that was in the past due to wind issues.

                              Just like to add can i do abs excercises? Also i did do some knee ups before of which after i did them i pee'd without having to tense my pelvic area.
                              Last edited by stevew; 06-02-2014, 05:44 PM.

                              Comment


                              • Under NOcircumstances would I recommend stretching of the penis itself.
                                I strongly agree with this statement. Fuck penis exercises. Good god so many fellas have destroyed their dicks just for hopes of gaining an inch. It's just sad. Yes, some have a little bit of success but is it worth the risk? Hell no. Get that guy healthy then let him be.

                                Stevew,

                                It sounds like you are dealing with the "Hard Flaccid Syndrome". I'm not saying that's the only thing you're dealing with but you have so many of the symptoms. Have you read this yet like I told you to? HF Unraveled Sample

                                Your pelvic floor muscles are directly impacted by your mental state. If you find that you are not in a relaxed, confident, healthy mental state for most of your day each and every day, you are likely causing direct muscular tension to the pelvic floor. This then directly impacts the flaccid and erect state of your penis. It can even effect curvature as well as sensitivity.

                                The troublesome part is that what usually happens is we react negatively to the physical symptoms of our penis without realizing that it is this negative mental state that keeps our problems persisting. This is why it's very important to break the loop at the root of the problem which is your mental state. In a way, if you worry about your penis, it will look worried too...you know what I'm saying?

                                Seriously man start looking up beginner yoga on youtube. Very short and easy stuff. Don't force anything. Get a foam roller and start rolling out the muscles in your legs and back. Trigger point therapy can help release tension in the body that then releases mental tension. It's all connected. It goes both ways. You have to break the feedback chain. That's why it's recommended to do both physical relaxation through yoga as well as mental relaxation through meditation. Combine those two things with a healthy plant based diet and you will be well on your way to fixing many problems that you shouldn't have to be dealing with.

                                At this point, I can't tell you exactly what is going on with your situation. But I can tell you that you have to stop wondering whether this stuff will help you or not and just start doing it. It will take time to develop a routine and you must start gradually so you can sustain everything for the long run. Then after a few months I'm positive you will have seen a lot of good results.

                                Other things...

                                Stop masturbating for a while. If you can muster up the will power, 90 days of abstinence is a great way to reset the pelvic floor and let it return to a more normal state. I'm currently doing this myself and have done it before though I only ever made it to about 70 or 75 days. (this is not unhealthy...you will have wet dreams when nature needs to take care of itself)

                                I would wait on the kegal exercises. Try to get a few weeks into this before doing that stuff. I'm currently doing it but until now I think it would've been too soon (and I've been doing yoga, meditation and diet now for about 9 months or so). You've got to get your pelvic floor in a more relaxed state before trying to strengthen it through kegals.
                                VoodooChild
                                Senior Member
                                Last edited by VoodooChild; 06-02-2014, 06:39 PM.
                                "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
                                -Voodoo
                                therebornman.tumblr.com

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